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Multidisciplinary approach to community engagement in global public health research.

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Title: Multidisciplinary approach to community engagement in global public health research.
Authors: Adeagbo, Oluwafemi1,2 oluwafemi-adeagbo@uiowa.edu, Hlongwa, Mbuzeleni3,4, Tleis, Malak5, Dubey, Priyanka1, Afifi, Rima1, Butali, Azeez6,7
Source: Wellcome Open Research. 2023, p1-9. 9p.
Subject Terms: *Public health, Middle-income countries, Ethics, Genomes, Genome size
Abstract: Recently, there has been a renewed interest in the role of community engagement in knowledge production and ethical issues such as ‘helicopter research’, indicating exploitative research activities of some researchers as well as short-term relationships with research communities especially in low- and middle-income countries. This approach is detrimental to both communities and the larger scientific community as this may breed mistrust. Major institutions such as the National Institute of Health and Care Research in the United Kingdom have highlighted the importance of community engagement as a tool to improve the reach, quality, and impact of the research by incorporating the voices and concerns of marginalized communities. Similarly, in its 2022 guidance, the American Society for Human Genetics (ASGH) highlights the need to address underrepresentation in genomics research through community engagement. Establishing ethical and meaningful long-term relationships can be challenging especially for researchers who are not members of the community or those from other countries. This article describes how ‘community-engaged research’ can address some ethical challenges in global public health in different cultural settings. [ABSTRACT FROM AUTHOR]
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Abstract:Recently, there has been a renewed interest in the role of community engagement in knowledge production and ethical issues such as ‘helicopter research’, indicating exploitative research activities of some researchers as well as short-term relationships with research communities especially in low- and middle-income countries. This approach is detrimental to both communities and the larger scientific community as this may breed mistrust. Major institutions such as the National Institute of Health and Care Research in the United Kingdom have highlighted the importance of community engagement as a tool to improve the reach, quality, and impact of the research by incorporating the voices and concerns of marginalized communities. Similarly, in its 2022 guidance, the American Society for Human Genetics (ASGH) highlights the need to address underrepresentation in genomics research through community engagement. Establishing ethical and meaningful long-term relationships can be challenging especially for researchers who are not members of the community or those from other countries. This article describes how ‘community-engaged research’ can address some ethical challenges in global public health in different cultural settings. [ABSTRACT FROM AUTHOR]
ISSN:2398502X
DOI:10.12688/wellcomeopenres.19974.2