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National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)

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Title: National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
Authors: Alonso, Verónica1 (AUTHOR), Abaitua, Ignacio1 (AUTHOR), Zurriaga, Óscar2 (AUTHOR), Astray, Jenaro3 (AUTHOR), Errezola, Manuel4 (AUTHOR), Aldana-Espinal, Josefa M5 (AUTHOR), Margolles, Mario J6 (AUTHOR), Jiménez, Josep7 (AUTHOR), Palomar, Joaquín A8 (AUTHOR), Santana, Milagrosa9 (AUTHOR), Ramalle-Gomarra, Enrique10 (AUTHOR), Ramos, Julián M11 (AUTHOR), Arribas, Federico E12 (AUTHOR), Álamo, Rufino13 (AUTHOR), Gutiérrez-Ávila, Gonzalo14 (AUTHOR), Galmés, Antònia15 (AUTHOR), García-Ribes, Miguel16 (AUTHOR), Navarro, Carmen17 (AUTHOR), Ardanaz, Eva18 (AUTHOR), de la Paz, Manuel Posada1 (AUTHOR) mposada@isciii.es
Source: Orphanet Journal of Rare Diseases. 2014, Vol. 9 Issue 1, p1-2. 2p. 1 Graph, 1 Map.
Database: Academic Search Ultimate
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  Data: National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
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  Data: <searchLink fieldCode="AR" term="%22Alonso%2C+Verónica%22">Alonso, Verónica</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Abaitua%2C+Ignacio%22">Abaitua, Ignacio</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Zurriaga%2C+Óscar%22">Zurriaga, Óscar</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Astray%2C+Jenaro%22">Astray, Jenaro</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Errezola%2C+Manuel%22">Errezola, Manuel</searchLink><relatesTo>4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Aldana-Espinal%2C+Josefa+M%22">Aldana-Espinal, Josefa M</searchLink><relatesTo>5</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Margolles%2C+Mario+J%22">Margolles, Mario J</searchLink><relatesTo>6</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Jiménez%2C+Josep%22">Jiménez, Josep</searchLink><relatesTo>7</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Palomar%2C+Joaquín+A%22">Palomar, Joaquín A</searchLink><relatesTo>8</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Santana%2C+Milagrosa%22">Santana, Milagrosa</searchLink><relatesTo>9</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ramalle-Gomarra%2C+Enrique%22">Ramalle-Gomarra, Enrique</searchLink><relatesTo>10</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ramos%2C+Julián+M%22">Ramos, Julián M</searchLink><relatesTo>11</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Arribas%2C+Federico+E%22">Arribas, Federico E</searchLink><relatesTo>12</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Álamo%2C+Rufino%22">Álamo, Rufino</searchLink><relatesTo>13</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Gutiérrez-Ávila%2C+Gonzalo%22">Gutiérrez-Ávila, Gonzalo</searchLink><relatesTo>14</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Galmés%2C+Antònia%22">Galmés, Antònia</searchLink><relatesTo>15</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22García-Ribes%2C+Miguel%22">García-Ribes, Miguel</searchLink><relatesTo>16</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Navarro%2C+Carmen%22">Navarro, Carmen</searchLink><relatesTo>17</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ardanaz%2C+Eva%22">Ardanaz, Eva</searchLink><relatesTo>18</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22de+la+Paz%2C+Manuel+Posada%22">de la Paz, Manuel Posada</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> mposada@isciii.es</i>
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 2014, Vol. 9 Issue 1, p1-2. 2p. 1 Graph, 1 Map.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=108310890
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        Value: 10.1186/1750-1172-9-S1-P5
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        Text: English
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      – TitleFull: National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
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              Text: 2014
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