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National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)

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Bibliographic Details
Title: National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
Authors: Alonso, Verónica1 (AUTHOR), Abaitua, Ignacio1 (AUTHOR), Zurriaga, Óscar2 (AUTHOR), Astray, Jenaro3 (AUTHOR), Errezola, Manuel4 (AUTHOR), Aldana-Espinal, Josefa M5 (AUTHOR), Margolles, Mario J6 (AUTHOR), Jiménez, Josep7 (AUTHOR), Palomar, Joaquín A8 (AUTHOR), Santana, Milagrosa9 (AUTHOR), Ramalle-Gomarra, Enrique10 (AUTHOR), Ramos, Julián M11 (AUTHOR), Arribas, Federico E12 (AUTHOR), Álamo, Rufino13 (AUTHOR), Gutiérrez-Ávila, Gonzalo14 (AUTHOR), Galmés, Antònia15 (AUTHOR), García-Ribes, Miguel16 (AUTHOR), Navarro, Carmen17 (AUTHOR), Ardanaz, Eva18 (AUTHOR), de la Paz, Manuel Posada1 (AUTHOR) mposada@isciii.es
Source: Orphanet Journal of Rare Diseases. 2014, Vol. 9 Issue 1, p1-2. 2p. 1 Graph, 1 Map.
Database: Academic Search Ultimate
Description
ISSN:17501172
DOI:10.1186/1750-1172-9-S1-P5