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The DM-scope registry: a rare disease innovative framework bridging the gap between research and medical care.

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Title: The DM-scope registry: a rare disease innovative framework bridging the gap between research and medical care.
Authors: De Antonio, Marie1,2 marie.de-antonio@aphp.fr, Dogan, Céline1 celine.dogan@gmail.com, Daidj, Ferroudja1 ferroudja.daidj@aphp.fr, Eymard, Bruno1 bruno.eymard@aphp.fr, Puymirat, Jack3 jack.puymirat@crchudequebec.ulaval.ca, Mathieu, Jean4 jmathieu@USherbrooke.ca, Gagnon, Cynthia4,5 Cynthia.Gagnon4@USherbrooke.ca, Katsahian, Sandrine2,6 sandrine.katsahian@aphp.fr, Hamroun, Dalil7 d-hamroun@chu-montpellier.fr, Bassez, Guillaume1,8 guillaume.bassez@aphp.fr, Filnemus Myotonic Dystrophy Study Group (CORPORATE AUTHOR)
Source: Orphanet Journal of Rare Diseases. 6/3/2019, Vol. 14 Issue 1, pN.PAG-N.PAG. 1p.
Database: Academic Search Ultimate
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  Data: <searchLink fieldCode="AR" term="%22De+Antonio%2C+Marie%22">De Antonio, Marie</searchLink><relatesTo>1,2</relatesTo><i> marie.de-antonio@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Dogan%2C+Céline%22">Dogan, Céline</searchLink><relatesTo>1</relatesTo><i> celine.dogan@gmail.com</i><br /><searchLink fieldCode="AR" term="%22Daidj%2C+Ferroudja%22">Daidj, Ferroudja</searchLink><relatesTo>1</relatesTo><i> ferroudja.daidj@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Eymard%2C+Bruno%22">Eymard, Bruno</searchLink><relatesTo>1</relatesTo><i> bruno.eymard@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Puymirat%2C+Jack%22">Puymirat, Jack</searchLink><relatesTo>3</relatesTo><i> jack.puymirat@crchudequebec.ulaval.ca</i><br /><searchLink fieldCode="AR" term="%22Mathieu%2C+Jean%22">Mathieu, Jean</searchLink><relatesTo>4</relatesTo><i> jmathieu@USherbrooke.ca</i><br /><searchLink fieldCode="AR" term="%22Gagnon%2C+Cynthia%22">Gagnon, Cynthia</searchLink><relatesTo>4,5</relatesTo><i> Cynthia.Gagnon4@USherbrooke.ca</i><br /><searchLink fieldCode="AR" term="%22Katsahian%2C+Sandrine%22">Katsahian, Sandrine</searchLink><relatesTo>2,6</relatesTo><i> sandrine.katsahian@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Hamroun%2C+Dalil%22">Hamroun, Dalil</searchLink><relatesTo>7</relatesTo><i> d-hamroun@chu-montpellier.fr</i><br /><searchLink fieldCode="AR" term="%22Bassez%2C+Guillaume%22">Bassez, Guillaume</searchLink><relatesTo>1,8</relatesTo><i> guillaume.bassez@aphp.fr</i><br /><searchLink fieldCode="AR" term="%22Filnemus+Myotonic+Dystrophy+Study+Group%22">Filnemus Myotonic Dystrophy Study Group</searchLink> (CORPORATE AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 6/3/2019, Vol. 14 Issue 1, pN.PAG-N.PAG. 1p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=136786880
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        Value: 10.1186/s13023-019-1088-3
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              Text: 6/3/2019
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