The DM-scope registry: a rare disease innovative framework bridging the gap between research and medical care.
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| Title: | The DM-scope registry: a rare disease innovative framework bridging the gap between research and medical care. |
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| Authors: | De Antonio, Marie1,2 marie.de-antonio@aphp.fr, Dogan, Céline1 celine.dogan@gmail.com, Daidj, Ferroudja1 ferroudja.daidj@aphp.fr, Eymard, Bruno1 bruno.eymard@aphp.fr, Puymirat, Jack3 jack.puymirat@crchudequebec.ulaval.ca, Mathieu, Jean4 jmathieu@USherbrooke.ca, Gagnon, Cynthia4,5 Cynthia.Gagnon4@USherbrooke.ca, Katsahian, Sandrine2,6 sandrine.katsahian@aphp.fr, Hamroun, Dalil7 d-hamroun@chu-montpellier.fr, Bassez, Guillaume1,8 guillaume.bassez@aphp.fr, Filnemus Myotonic Dystrophy Study Group (CORPORATE AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 6/3/2019, Vol. 14 Issue 1, pN.PAG-N.PAG. 1p. |
| Database: | Academic Search Ultimate |
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| ISSN: | 17501172 |
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| DOI: | 10.1186/s13023-019-1088-3 |
