Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study.
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| Title: | Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study. |
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| Authors: | Gill, Liz1 (AUTHOR), Burrell, Sue1 (AUTHOR), Chamberlayne, John1 (AUTHOR), Lombardelli, Stephen2 (AUTHOR) slombardelli@alnylam.com, Mora, Jordanna3 (AUTHOR), Mason, Nicola4 (AUTHOR), Schurer, Marieke5 (AUTHOR), Merkel, Madeline3 (AUTHOR), Meninger, Stephen3 (AUTHOR), Ko, John J.3 (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 4/26/2021, Vol. 16 Issue 1, p1-14. 14p. |
| Database: | Academic Search Ultimate |
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| FullText | Links: – Type: pdflink Text: Availability: 1 |
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| Header | DbId: asn DbLabel: Academic Search Ultimate An: 150022870 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=150022870 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-021-01816-2 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 14 StartPage: 1 Titles: – TitleFull: Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Gill, Liz – PersonEntity: Name: NameFull: Burrell, Sue – PersonEntity: Name: NameFull: Chamberlayne, John – PersonEntity: Name: NameFull: Lombardelli, Stephen – PersonEntity: Name: NameFull: Mora, Jordanna – PersonEntity: Name: NameFull: Mason, Nicola – PersonEntity: Name: NameFull: Schurer, Marieke – PersonEntity: Name: NameFull: Merkel, Madeline – PersonEntity: Name: NameFull: Meninger, Stephen – PersonEntity: Name: NameFull: Ko, John J. IsPartOfRelationships: – BibEntity: Dates: – D: 26 M: 04 Text: 4/26/2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 16 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
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