Building a trusted framework for uncertainty assessment in rare diseases: suggestions for improvement (Response to "TRUST4RD: tool for reducing uncertainties in the evidence generation for specialised treatments for rare diseases").
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| Title: | Building a trusted framework for uncertainty assessment in rare diseases: suggestions for improvement (Response to "TRUST4RD: tool for reducing uncertainties in the evidence generation for specialised treatments for rare diseases"). |
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| Authors: | Grimm, Sabine E.1 (AUTHOR) Sabine.grimm@mumc.nl, Pouwels, Xavier2 (AUTHOR), Ramaekers, Bram L. T.1 (AUTHOR), Wijnen, Ben1 (AUTHOR), Knies, Saskia3 (AUTHOR), Grutters, Janneke4 (AUTHOR), Joore, Manuela A.1 (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 7/19/2021, Vol. 16 Issue 1, p1-5. 5p. |
| Database: | Academic Search Ultimate |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: asn DbLabel: Academic Search Ultimate An: 151471334 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Building a trusted framework for uncertainty assessment in rare diseases: suggestions for improvement (Response to "TRUST4RD: tool for reducing uncertainties in the evidence generation for specialised treatments for rare diseases"). – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Grimm%2C+Sabine+E%2E%22">Grimm, Sabine E.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> Sabine.grimm@mumc.nl</i><br /><searchLink fieldCode="AR" term="%22Pouwels%2C+Xavier%22">Pouwels, Xavier</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ramaekers%2C+Bram+L%2E+T%2E%22">Ramaekers, Bram L. T.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wijnen%2C+Ben%22">Wijnen, Ben</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Knies%2C+Saskia%22">Knies, Saskia</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Grutters%2C+Janneke%22">Grutters, Janneke</searchLink><relatesTo>4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Joore%2C+Manuela+A%2E%22">Joore, Manuela A.</searchLink><relatesTo>1</relatesTo> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 7/19/2021, Vol. 16 Issue 1, p1-5. 5p. |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=151471334 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-020-01666-4 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 5 StartPage: 1 Titles: – TitleFull: Building a trusted framework for uncertainty assessment in rare diseases: suggestions for improvement (Response to "TRUST4RD: tool for reducing uncertainties in the evidence generation for specialised treatments for rare diseases"). Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Grimm, Sabine E. – PersonEntity: Name: NameFull: Pouwels, Xavier – PersonEntity: Name: NameFull: Ramaekers, Bram L. T. – PersonEntity: Name: NameFull: Wijnen, Ben – PersonEntity: Name: NameFull: Knies, Saskia – PersonEntity: Name: NameFull: Grutters, Janneke – PersonEntity: Name: NameFull: Joore, Manuela A. IsPartOfRelationships: – BibEntity: Dates: – D: 19 M: 07 Text: 7/19/2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 16 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
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