"Why them, why me, why us?" The experiences of parents of children with lysosomal acid lipase deficiency: an interpretative phenomenological analysis study.
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| Title: | "Why them, why me, why us?" The experiences of parents of children with lysosomal acid lipase deficiency: an interpretative phenomenological analysis study. |
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| Authors: | Hassall, S.1,2 (AUTHOR), Smith, D. M.1,3 (AUTHOR), Rust, S.4 (AUTHOR), Jones, S. A.1,4 (AUTHOR), Wittkowski, A.1,2,3 (AUTHOR) anja.wittkowski@manchester.ac.uk |
| Source: | Orphanet Journal of Rare Diseases. 5/12/2022, Vol. 17 Issue 1, p1-11. 11p. |
| Database: | Academic Search Ultimate |
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| FullText | Links: – Type: pdflink Text: Availability: 1 |
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| Header | DbId: asn DbLabel: Academic Search Ultimate An: 156891779 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=156891779 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-022-02335-4 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 11 StartPage: 1 Titles: – TitleFull: "Why them, why me, why us?" The experiences of parents of children with lysosomal acid lipase deficiency: an interpretative phenomenological analysis study. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Hassall, S. – PersonEntity: Name: NameFull: Smith, D. M. – PersonEntity: Name: NameFull: Rust, S. – PersonEntity: Name: NameFull: Jones, S. A. – PersonEntity: Name: NameFull: Wittkowski, A. IsPartOfRelationships: – BibEntity: Dates: – D: 12 M: 05 Text: 5/12/2022 Type: published Y: 2022 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 17 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
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