Literature review and expert opinion on the impact of achondroplasia on medical complications and health-related quality of life and expectations for long-term impact of vosoritide: a modified Delphi study.
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| Title: | Literature review and expert opinion on the impact of achondroplasia on medical complications and health-related quality of life and expectations for long-term impact of vosoritide: a modified Delphi study. |
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| Authors: | Savarirayan, Ravi1 (AUTHOR) ravi.savarirayan@vcgs.org.au, Baratela, Wagner2 (AUTHOR), Butt, Thomas3 (AUTHOR), Cormier-Daire, Valérie4 (AUTHOR), Irving, Melita5 (AUTHOR), Miller, Bradley S.6 (AUTHOR), Mohnike, Klaus7 (AUTHOR), Ozono, Keiichi8 (AUTHOR), Rosenfeld, Ron9 (AUTHOR), Selicorni, Angelo10 (AUTHOR), Thompson, Dominic11 (AUTHOR), White, Klane K.12 (AUTHOR), Wright, Michael13 (AUTHOR), Fredwall, Svein O.14 (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 6/13/2022, Vol. 17 Issue 1, p1-10. 10p. |
| Database: | Academic Search Ultimate |
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| FullText | Links: – Type: pdflink Text: Availability: 1 |
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| Header | DbId: asn DbLabel: Academic Search Ultimate An: 157411309 AccessLevel: 2 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=157411309 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1186/s13023-022-02372-z Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 10 StartPage: 1 Titles: – TitleFull: Literature review and expert opinion on the impact of achondroplasia on medical complications and health-related quality of life and expectations for long-term impact of vosoritide: a modified Delphi study. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Savarirayan, Ravi – PersonEntity: Name: NameFull: Baratela, Wagner – PersonEntity: Name: NameFull: Butt, Thomas – PersonEntity: Name: NameFull: Cormier-Daire, Valérie – PersonEntity: Name: NameFull: Irving, Melita – PersonEntity: Name: NameFull: Miller, Bradley S. – PersonEntity: Name: NameFull: Mohnike, Klaus – PersonEntity: Name: NameFull: Ozono, Keiichi – PersonEntity: Name: NameFull: Rosenfeld, Ron – PersonEntity: Name: NameFull: Selicorni, Angelo – PersonEntity: Name: NameFull: Thompson, Dominic – PersonEntity: Name: NameFull: White, Klane K. – PersonEntity: Name: NameFull: Wright, Michael – PersonEntity: Name: NameFull: Fredwall, Svein O. IsPartOfRelationships: – BibEntity: Dates: – D: 13 M: 06 Text: 6/13/2022 Type: published Y: 2022 Identifiers: – Type: issn-print Value: 17501172 Numbering: – Type: volume Value: 17 – Type: issue Value: 1 Titles: – TitleFull: Orphanet Journal of Rare Diseases Type: main |
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