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EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders.

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Title: EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders.
Authors: Atalaia, Antonio1 (AUTHOR) antonio.marques-atalaia@inserm.fr, Wandrei, Dagmar2 (AUTHOR), Lalout, Nawel3,4 (AUTHOR), Thompson, Rachel5 (AUTHOR), Tassoni, Adrian2 (AUTHOR), 't Hoen, Peter A. C.3 (AUTHOR), Athanasiou, Dimitrios6 (AUTHOR), Baker, Suzie-Ann6 (AUTHOR), Sakellariou, Paraskevi7 (AUTHOR), Paliouras, Georgios7 (AUTHOR), D'Angelo, Carla8 (AUTHOR), Horvath, Rita9 (AUTHOR), Mancuso, Michelangelo10 (AUTHOR), van der Beek, Nadine11 (AUTHOR), Kornblum, Cornelia12 (AUTHOR), Kirschner, Janbernd13 (AUTHOR), Pareyson, Davide14 (AUTHOR), Bassez, Guillaume15 (AUTHOR), Blacas, Laura16 (AUTHOR), Jacoupy, Maxime16 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 2/14/2024, Vol. 19 Issue 1, p1-15. 15p.
Database: Academic Search Ultimate
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 2/14/2024, Vol. 19 Issue 1, p1-15. 15p.
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              Text: 2/14/2024
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