Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis.

Saved in:
Bibliographic Details
Title: Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis.
Authors: Johansen, L.1 (AUTHOR), O'Hare, F.2,3 (AUTHOR), Shepard, E. R.1 (AUTHOR), Ayton, L. N.2,3,4 (AUTHOR), Pelenstov, L. J.5 (AUTHOR), Kearns, L. S.3,6 (AUTHOR), Galvin, K. L.7 (AUTHOR) kgalvin@unimelb.edu.au
Source: Orphanet Journal of Rare Diseases. 3/21/2024, Vol. 19 Issue 1, p1-14. 14p.
Database: Academic Search Ultimate
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: asn
DbLabel: Academic Search Ultimate
An: 176222589
AccessLevel: 2
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Johansen%2C+L%2E%22">Johansen, L.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22O'Hare%2C+F%2E%22">O'Hare, F.</searchLink><relatesTo>2,3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Shepard%2C+E%2E+R%2E%22">Shepard, E. R.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ayton%2C+L%2E+N%2E%22">Ayton, L. N.</searchLink><relatesTo>2,3,4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pelenstov%2C+L%2E+J%2E%22">Pelenstov, L. J.</searchLink><relatesTo>5</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kearns%2C+L%2E+S%2E%22">Kearns, L. S.</searchLink><relatesTo>3,6</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Galvin%2C+K%2E+L%2E%22">Galvin, K. L.</searchLink><relatesTo>7</relatesTo> (AUTHOR)<i> kgalvin@unimelb.edu.au</i>
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 3/21/2024, Vol. 19 Issue 1, p1-14. 14p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=176222589
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1186/s13023-024-03125-w
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 14
        StartPage: 1
    Titles:
      – TitleFull: Exploring the support needs of Australian parents of young children with Usher syndrome: a qualitative thematic analysis.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Johansen, L.
      – PersonEntity:
          Name:
            NameFull: O'Hare, F.
      – PersonEntity:
          Name:
            NameFull: Shepard, E. R.
      – PersonEntity:
          Name:
            NameFull: Ayton, L. N.
      – PersonEntity:
          Name:
            NameFull: Pelenstov, L. J.
      – PersonEntity:
          Name:
            NameFull: Kearns, L. S.
      – PersonEntity:
          Name:
            NameFull: Galvin, K. L.
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 21
              M: 03
              Text: 3/21/2024
              Type: published
              Y: 2024
          Identifiers:
            – Type: issn-print
              Value: 17501172
          Numbering:
            – Type: volume
              Value: 19
            – Type: issue
              Value: 1
          Titles:
            – TitleFull: Orphanet Journal of Rare Diseases
              Type: main
ResultId 1