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A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem.

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Title: A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem.
Authors: Klein, T. L.1,2 (AUTHOR) terri@mpssociety.org, Bender, J.3 (AUTHOR), Bolton, S.4 (AUTHOR), Collin-Histed, T.5,6 (AUTHOR), Daher, A.7 (AUTHOR), De Baere, L.8 (AUTHOR), Dong, D.3 (AUTHOR), Hopkin, J.9 (AUTHOR), Johnson, J.8,10 (AUTHOR), Lai, T.11 (AUTHOR), Pavlou, M.8 (AUTHOR), Schaller, T.12,13 (AUTHOR), Žnidar, I.5 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 7/10/2024, Vol. 19 Issue 1, p1-11. 11p.
Database: Academic Search Ultimate
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  Data: A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem.
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 7/10/2024, Vol. 19 Issue 1, p1-11. 11p.
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        Value: 10.1186/s13023-024-03262-2
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              Text: 7/10/2024
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