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Burden of illness in Rett syndrome: initial evaluation of a disorder-specific caregiver survey.

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Title: Burden of illness in Rett syndrome: initial evaluation of a disorder-specific caregiver survey.
Authors: Kaufmann, Walter E.1,2 (AUTHOR) walter.e.kaufmann@emory.edu, Percy, Alan K.3 (AUTHOR), Neul, Jeffrey L.4 (AUTHOR), Downs, Jenny5 (AUTHOR), Leonard, Helen5 (AUTHOR), Nues, Paige6 (AUTHOR), Sharma, Girish D.7 (AUTHOR), Bartolotta, Theresa E.8 (AUTHOR), Townend, Gillian S.9 (AUTHOR), Curfs, Leopold M. G.9 (AUTHOR), Mariotti, Orietta10 (AUTHOR), Buda, Claude11 (AUTHOR), O'Leary, Heather M.1 (AUTHOR), Oberman, Lindsay M.12 (AUTHOR), Vogel-Farley, Vanessa1 (AUTHOR), Barnes, Katherine V.1 (AUTHOR), Missling, Christopher U.1 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 8/13/2024, Vol. 19 Issue 1, p1-14. 14p.
Database: Academic Search Ultimate
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PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=179040736
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              Text: 8/13/2024
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