184P The integration of PROMs and clinician reported data: a holistic approach to characterise disease burden and treatment impact. - Walker, H.; Page, J.; Murphy, L.; Segovia, S.; Karkkainen, E.; Cavalcante, E.; Madden, M.; Adcock, K.; Farrugia, M.; Irwin, J.; Lilleker, J.; McConville, J.; et al. (Neuromuscular Disorders, 2024)