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Evidence of inequities experienced by the rare disease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence.

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Title: Evidence of inequities experienced by the rare disease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence.
Authors: Briscoe, Simon1 (AUTHOR) s.briscoe@exeter.ac.uk, Martin Pintado, Clara1 (AUTHOR), Sutcliffe, Katy2 (AUTHOR), Melendez-Torres, G. J.1 (AUTHOR), Garside, Ruth1 (AUTHOR), Lawal, Hassanat M.1 (AUTHOR), Orr, Noreen1 (AUTHOR), Shaw, Liz1 (AUTHOR), Thompson Coon, Jo1 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 6/12/2025, Vol. 20 Issue 1, p1-29. 29p.
Database: Academic Search Ultimate
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  Data: Evidence of inequities experienced by the rare disease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence.
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  Data: <searchLink fieldCode="AR" term="%22Briscoe%2C+Simon%22">Briscoe, Simon</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> s.briscoe@exeter.ac.uk</i><br /><searchLink fieldCode="AR" term="%22Martin+Pintado%2C+Clara%22">Martin Pintado, Clara</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sutcliffe%2C+Katy%22">Sutcliffe, Katy</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Melendez-Torres%2C+G%2E+J%2E%22">Melendez-Torres, G. J.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Garside%2C+Ruth%22">Garside, Ruth</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lawal%2C+Hassanat+M%2E%22">Lawal, Hassanat M.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Orr%2C+Noreen%22">Orr, Noreen</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Shaw%2C+Liz%22">Shaw, Liz</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Thompson+Coon%2C+Jo%22">Thompson Coon, Jo</searchLink><relatesTo>1</relatesTo> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 6/12/2025, Vol. 20 Issue 1, p1-29. 29p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=185943130
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              Text: 6/12/2025
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