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Unmet needs of adults living with mucopolysaccharidosis II: data from the Hunter Outcome Survey.

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Title: Unmet needs of adults living with mucopolysaccharidosis II: data from the Hunter Outcome Survey.
Authors: Muenzer, Joseph1 (AUTHOR) muenzer@med.unc.edu, Amartino, Hernan2 (AUTHOR), Giugliani, Roberto3 (AUTHOR), Harmatz, Paul4 (AUTHOR), Lin, Shuan-Pei5 (AUTHOR), Link, Bianca6 (AUTHOR), Molter, David7 (AUTHOR), Ramaswami, Uma8 (AUTHOR), Scarpa, Maurizio9 (AUTHOR), Botha, Jaco10 (AUTHOR), Audi, Jennifer10,11 (AUTHOR), Burton, Barbara K.12 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 7/1/2025, Vol. 20 Issue 1, p1-15. 15p.
Database: Academic Search Ultimate
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  Data: Unmet needs of adults living with mucopolysaccharidosis II: data from the Hunter Outcome Survey.
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  Data: <searchLink fieldCode="AR" term="%22Muenzer%2C+Joseph%22">Muenzer, Joseph</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> muenzer@med.unc.edu</i><br /><searchLink fieldCode="AR" term="%22Amartino%2C+Hernan%22">Amartino, Hernan</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Giugliani%2C+Roberto%22">Giugliani, Roberto</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Harmatz%2C+Paul%22">Harmatz, Paul</searchLink><relatesTo>4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lin%2C+Shuan-Pei%22">Lin, Shuan-Pei</searchLink><relatesTo>5</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Link%2C+Bianca%22">Link, Bianca</searchLink><relatesTo>6</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Molter%2C+David%22">Molter, David</searchLink><relatesTo>7</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ramaswami%2C+Uma%22">Ramaswami, Uma</searchLink><relatesTo>8</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Scarpa%2C+Maurizio%22">Scarpa, Maurizio</searchLink><relatesTo>9</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Botha%2C+Jaco%22">Botha, Jaco</searchLink><relatesTo>10</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Audi%2C+Jennifer%22">Audi, Jennifer</searchLink><relatesTo>10,11</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Burton%2C+Barbara+K%2E%22">Burton, Barbara K.</searchLink><relatesTo>12</relatesTo> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 7/1/2025, Vol. 20 Issue 1, p1-15. 15p.
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        Value: 10.1186/s13023-024-03464-8
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        Text: English
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              Text: 7/1/2025
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