My A–T pack: a qualitative study of the utility, acceptability, design, and content of a family-designed and owned information pack relevant to the lives of children and young people living with ataxia telangiectasia. - Khan, Munira; Cassidy, Elizabeth; Parkin, Tracey; Wallace, Amanda; Carter, Bernie; Whitehouse, William; Munro, James; Paton, Joanne; Bunn, Lisa (Orphanet Journal of Rare Diseases, 2025)