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Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta.

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Title: Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta.
Authors: Mordenti, Marina1 (AUTHOR), Panzeri, Leonardo2 (AUTHOR), Moroni, Alice1 (AUTHOR) alice.moroni@ior.it, Boarini, Manila1 (AUTHOR), Calzolari, Marta1 (AUTHOR), Gurioli, Francesca1 (AUTHOR), Pollicini, Chiara3 (AUTHOR), Rogati, Giulia3 (AUTHOR), Leardini, Alberto3 (AUTHOR), Sangiorgi, Luca1 (AUTHOR)
Source: Orphanet Journal of Rare Diseases. 9/30/2025, Vol. 20 Issue 1, p1-10. 10p.
Database: Academic Search Ultimate
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  Data: Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta.
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  Data: <searchLink fieldCode="AR" term="%22Mordenti%2C+Marina%22">Mordenti, Marina</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Panzeri%2C+Leonardo%22">Panzeri, Leonardo</searchLink><relatesTo>2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Moroni%2C+Alice%22">Moroni, Alice</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> alice.moroni@ior.it</i><br /><searchLink fieldCode="AR" term="%22Boarini%2C+Manila%22">Boarini, Manila</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Calzolari%2C+Marta%22">Calzolari, Marta</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Gurioli%2C+Francesca%22">Gurioli, Francesca</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pollicini%2C+Chiara%22">Pollicini, Chiara</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rogati%2C+Giulia%22">Rogati, Giulia</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Leardini%2C+Alberto%22">Leardini, Alberto</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sangiorgi%2C+Luca%22">Sangiorgi, Luca</searchLink><relatesTo>1</relatesTo> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Orphanet+Journal+of+Rare+Diseases%22">Orphanet Journal of Rare Diseases</searchLink>. 9/30/2025, Vol. 20 Issue 1, p1-10. 10p.
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=asn&AN=188354198
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              Text: 9/30/2025
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              Y: 2025
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