Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta. - Mordenti, Marina; Panzeri, Leonardo; Moroni, Alice; Boarini, Manila; Calzolari, Marta; Gurioli, Francesca; Pollicini, Chiara; Rogati, Giulia; Leardini, Alberto; Sangiorgi, Luca (Orphanet Journal of Rare Diseases, 2025)