Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta.
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| Title: | Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta. |
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| Authors: | Mordenti, Marina1 (AUTHOR), Panzeri, Leonardo2 (AUTHOR), Moroni, Alice1 (AUTHOR) alice.moroni@ior.it, Boarini, Manila1 (AUTHOR), Calzolari, Marta1 (AUTHOR), Gurioli, Francesca1 (AUTHOR), Pollicini, Chiara3 (AUTHOR), Rogati, Giulia3 (AUTHOR), Leardini, Alberto3 (AUTHOR), Sangiorgi, Luca1 (AUTHOR) |
| Source: | Orphanet Journal of Rare Diseases. 9/30/2025, Vol. 20 Issue 1, p1-10. 10p. |
| Database: | Academic Search Ultimate |
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| ISSN: | 17501172 |
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| DOI: | 10.1186/s13023-025-03986-9 |
