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Using others' experiences. Cancer patients' expectations and navigation of a website providing narratives on prostate, breast and colorectal cancer.

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Title: Using others' experiences. Cancer patients' expectations and navigation of a website providing narratives on prostate, breast and colorectal cancer.
Authors: Engler, Jennifer1 jennifer.engler@charite.de, Adami, Sandra2, Adam, Yvonne1, Keller, Bettina1, Repke, Tim1, Fügemann, Hella1, Lucius-Hoene, Gabriele2, Müller-Nordhorn, Jacqueline1, Holmberg, Christine1
Source: Patient Education & Counseling. Aug2016, Vol. 99 Issue 8, p1325-1332. 8p.
Subject Terms: *Medical education, *Focus groups, *Qualitative research, Prostate cancer treatment, Cancer patients, Colon cancer, Medical informatics, Breast tumors, Rectum tumors, Colon tumors, Prostate tumors, Internet, Patient satisfaction, Narratives, Psychology, Cancer & psychology
Abstract: Objective: To understand what cancer patients expect and may learn from other patients' experiences, as analyzed and sorted for presentation on a website called krankheitserfahrungen.de (meaning "illness experiences").Methods: Mixed methods approach including log file analyses, survey data analyses and thematic analysis of focus group discussions.Results: Users highly valued the wide range of patient experiences presented. The academic leadership of krankheitserfahrungen.de made them trust the information quality. Reading, watching and listening to other cancer patients' experiences gave users a feeling of hope and confidence. Searching for persons with similar experiences was a major way of navigating the website.Conclusion: Patient narratives as presented on krankheitserfahrungen.de provide a helpful resource, supporting cancer patients' engagement with their disease. Having access to such research-informed accounts of everyday cancer experiences was seen as a great contribution to existing available patient information.Practice Implications: When health information websites include experiences, they should adhere to quality standards of qualitative research and encompass a wide range, so that users are able to find patients similar to themselves. Filter options are a helpful tool. A mix of written text and videos is beneficial, as users have different preferences. The inclusion of patient photographs and video interviews facilitates authenticity and closeness. [ABSTRACT FROM AUTHOR]
Copyright of Patient Education & Counseling is the property of Elsevier B.V. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
FullText Text:
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DbLabel: Education Research Complete
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PubType: Academic Journal
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  Data: Using others' experiences. Cancer patients' expectations and navigation of a website providing narratives on prostate, breast and colorectal cancer.
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  Data: <searchLink fieldCode="AR" term="%22Engler%2C+Jennifer%22">Engler, Jennifer</searchLink><relatesTo>1</relatesTo><i> jennifer.engler@charite.de</i><br /><searchLink fieldCode="AR" term="%22Adami%2C+Sandra%22">Adami, Sandra</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Adam%2C+Yvonne%22">Adam, Yvonne</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Keller%2C+Bettina%22">Keller, Bettina</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Repke%2C+Tim%22">Repke, Tim</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Fügemann%2C+Hella%22">Fügemann, Hella</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Lucius-Hoene%2C+Gabriele%22">Lucius-Hoene, Gabriele</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Müller-Nordhorn%2C+Jacqueline%22">Müller-Nordhorn, Jacqueline</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Holmberg%2C+Christine%22">Holmberg, Christine</searchLink><relatesTo>1</relatesTo>
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  Data: <searchLink fieldCode="JN" term="%22Patient+Education+%26+Counseling%22">Patient Education & Counseling</searchLink>. Aug2016, Vol. 99 Issue 8, p1325-1332. 8p.
– Name: Subject
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  Data: *<searchLink fieldCode="DE" term="%22Medical+education%22">Medical education</searchLink><br />*<searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br />*<searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Prostate+cancer+treatment%22">Prostate cancer treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+patients%22">Cancer patients</searchLink><br /><searchLink fieldCode="DE" term="%22Colon+cancer%22">Colon cancer</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+informatics%22">Medical informatics</searchLink><br /><searchLink fieldCode="DE" term="%22Breast+tumors%22">Breast tumors</searchLink><br /><searchLink fieldCode="DE" term="%22Rectum+tumors%22">Rectum tumors</searchLink><br /><searchLink fieldCode="DE" term="%22Colon+tumors%22">Colon tumors</searchLink><br /><searchLink fieldCode="DE" term="%22Prostate+tumors%22">Prostate tumors</searchLink><br /><searchLink fieldCode="DE" term="%22Internet%22">Internet</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+satisfaction%22">Patient satisfaction</searchLink><br /><searchLink fieldCode="DE" term="%22Narratives%22">Narratives</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology%22">Psychology</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+%26+psychology%22">Cancer & psychology</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: <bold>Objective: </bold>To understand what cancer patients expect and may learn from other patients' experiences, as analyzed and sorted for presentation on a website called krankheitserfahrungen.de (meaning "illness experiences").<bold>Methods: </bold>Mixed methods approach including log file analyses, survey data analyses and thematic analysis of focus group discussions.<bold>Results: </bold>Users highly valued the wide range of patient experiences presented. The academic leadership of krankheitserfahrungen.de made them trust the information quality. Reading, watching and listening to other cancer patients' experiences gave users a feeling of hope and confidence. Searching for persons with similar experiences was a major way of navigating the website.<bold>Conclusion: </bold>Patient narratives as presented on krankheitserfahrungen.de provide a helpful resource, supporting cancer patients' engagement with their disease. Having access to such research-informed accounts of everyday cancer experiences was seen as a great contribution to existing available patient information.<bold>Practice Implications: </bold>When health information websites include experiences, they should adhere to quality standards of qualitative research and encompass a wide range, so that users are able to find patients similar to themselves. Filter options are a helpful tool. A mix of written text and videos is beneficial, as users have different preferences. The inclusion of patient photographs and video interviews facilitates authenticity and closeness. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Patient Education & Counseling is the property of Elsevier B.V. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=116576052
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        Value: 10.1016/j.pec.2016.03.015
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