View in EDS HTML Full Text PDF Full Text

Parental Experiences of Adolescent Cancer-Related Fatigue: A Qualitative Study.

Saved in:
Bibliographic Details
Title: Parental Experiences of Adolescent Cancer-Related Fatigue: A Qualitative Study.
Authors: Loades, Maria E1,2 (AUTHOR) m.e.loades@bath.ac.uk, James, Venessa1 (AUTHOR), Baker, Laura3 (AUTHOR), Jordan, Abbie1,4 (AUTHOR), Sharma, Aditi1 (AUTHOR)
Source: Journal of Pediatric Psychology. Nov/Dec2020, Vol. 45 Issue 10, p1093-1102. 10p. 2 Charts.
Subject Terms: *Parent attitudes, *Fatigue (Physiology), *Research, *Research methodology, *Evaluation research, *Qualitative research, *Comparative studies, *Parents, Cancer fatigue, Symptoms, Medical cooperation, Teenagers' conduct of life, Research funding, Tumors, Disease complications
Abstract: Objective: Cancer-related fatigue is common, disabling, and chronic, but professional help is not necessarily sought. Parents can support symptom management and facilitate help-seeking. This study explored parental experiences of their adolescent's cancer-related fatigue and what they do to help.Methods: Qualitative semi-structured interviews were conducted with 21 parents of 17 adolescents aged 12-18 who were previously diagnosed with cancer. Reflexive thematic analysis was used to analyze the data.Results: Three high-order themes were generated. Firstly, "fatigue is inevitable and unpredictable." This encompassed parental perceptions of fatigue as variable, distinct from normal tiredness, and linked to sleep and mood. Fatigue was seen as arising from cancer, which rendered parents helpless. Secondly, "fatigue is disruptive to normal life" beyond cancer treatment, which is contrary to expectations. Thirdly, parents managed fatigue by trying to balance the adolescent's desires for normality and their own perception of what is realistic with encouraging activities, and by seeking support from others.Conclusions: Parents see adolescent cancer-related fatigue as multi-faceted and experience it as unpredictable and attributed to cancer. They struggle to distinguish normal adolescent behavior from problematic fatigue, and to balance supporting and empowering the adolescent to live life to the fullest whilst also being realistic about the limitations imposed by fatigue and the benefits of activity. Parents try to manage fatigue practically but want more information about adolescent cancer-related fatigue to help establish their own and their adolescent's expectations. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Pediatric Psychology is the property of Oxford University Press / USA and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: ehh
DbLabel: Education Research Complete
An: 146706569
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Parental Experiences of Adolescent Cancer-Related Fatigue: A Qualitative Study.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Loades%2C+Maria+E%22">Loades, Maria E</searchLink><relatesTo>1,2</relatesTo> (AUTHOR)<i> m.e.loades@bath.ac.uk</i><br /><searchLink fieldCode="AR" term="%22James%2C+Venessa%22">James, Venessa</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Baker%2C+Laura%22">Baker, Laura</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Jordan%2C+Abbie%22">Jordan, Abbie</searchLink><relatesTo>1,4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sharma%2C+Aditi%22">Sharma, Aditi</searchLink><relatesTo>1</relatesTo> (AUTHOR)
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Journal+of+Pediatric+Psychology%22">Journal of Pediatric Psychology</searchLink>. Nov/Dec2020, Vol. 45 Issue 10, p1093-1102. 10p. 2 Charts.
– Name: Subject
  Label: Subject Terms
  Group: Su
  Data: *<searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br />*<searchLink fieldCode="DE" term="%22Fatigue+%28Physiology%29%22">Fatigue (Physiology)</searchLink><br />*<searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br />*<searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br />*<searchLink fieldCode="DE" term="%22Evaluation+research%22">Evaluation research</searchLink><br />*<searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br />*<searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br />*<searchLink fieldCode="DE" term="%22Parents%22">Parents</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+fatigue%22">Cancer fatigue</searchLink><br /><searchLink fieldCode="DE" term="%22Symptoms%22">Symptoms</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+cooperation%22">Medical cooperation</searchLink><br /><searchLink fieldCode="DE" term="%22Teenagers'+conduct+of+life%22">Teenagers' conduct of life</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Tumors%22">Tumors</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+complications%22">Disease complications</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: <bold>Objective: </bold>Cancer-related fatigue is common, disabling, and chronic, but professional help is not necessarily sought. Parents can support symptom management and facilitate help-seeking. This study explored parental experiences of their adolescent's cancer-related fatigue and what they do to help.<bold>Methods: </bold>Qualitative semi-structured interviews were conducted with 21 parents of 17 adolescents aged 12-18 who were previously diagnosed with cancer. Reflexive thematic analysis was used to analyze the data.<bold>Results: </bold>Three high-order themes were generated. Firstly, "fatigue is inevitable and unpredictable." This encompassed parental perceptions of fatigue as variable, distinct from normal tiredness, and linked to sleep and mood. Fatigue was seen as arising from cancer, which rendered parents helpless. Secondly, "fatigue is disruptive to normal life" beyond cancer treatment, which is contrary to expectations. Thirdly, parents managed fatigue by trying to balance the adolescent's desires for normality and their own perception of what is realistic with encouraging activities, and by seeking support from others.<bold>Conclusions: </bold>Parents see adolescent cancer-related fatigue as multi-faceted and experience it as unpredictable and attributed to cancer. They struggle to distinguish normal adolescent behavior from problematic fatigue, and to balance supporting and empowering the adolescent to live life to the fullest whilst also being realistic about the limitations imposed by fatigue and the benefits of activity. Parents try to manage fatigue practically but want more information about adolescent cancer-related fatigue to help establish their own and their adolescent's expectations. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Journal of Pediatric Psychology is the property of Oxford University Press / USA and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=146706569
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1093/jpepsy/jsaa080
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 10
        StartPage: 1093
    Subjects:
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Fatigue (Physiology)
        Type: general
      – SubjectFull: Research
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Evaluation research
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Parents
        Type: general
      – SubjectFull: Cancer fatigue
        Type: general
      – SubjectFull: Symptoms
        Type: general
      – SubjectFull: Medical cooperation
        Type: general
      – SubjectFull: Teenagers' conduct of life
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Tumors
        Type: general
      – SubjectFull: Disease complications
        Type: general
    Titles:
      – TitleFull: Parental Experiences of Adolescent Cancer-Related Fatigue: A Qualitative Study.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Loades, Maria E
      – PersonEntity:
          Name:
            NameFull: James, Venessa
      – PersonEntity:
          Name:
            NameFull: Baker, Laura
      – PersonEntity:
          Name:
            NameFull: Jordan, Abbie
      – PersonEntity:
          Name:
            NameFull: Sharma, Aditi
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 11
              Text: Nov/Dec2020
              Type: published
              Y: 2020
          Identifiers:
            – Type: issn-print
              Value: 01468693
          Numbering:
            – Type: volume
              Value: 45
            – Type: issue
              Value: 10
          Titles:
            – TitleFull: Journal of Pediatric Psychology
              Type: main
ResultId 1