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Barriers to Informational Support for Care Partners of People With Aphasia After Stroke.

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Title: Barriers to Informational Support for Care Partners of People With Aphasia After Stroke.
Authors: Shafer, Jennifer S.1 jennishafer@med.unc.edu, Haley, Katarina L.2, Jacks, Adam2
Source: American Journal of Speech-Language Pathology. Sep2023, Vol. 32 Issue 5, p2211-2231. 21p. 1 Diagram, 4 Charts.
Subject Terms: *Health services accessibility, *Qualitative research, *Comparative studies, *Psychology of caregivers, Social support, Professions, Stroke patients, Rehabilitation of aphasic persons, Descriptive statistics, Speech therapy education, Thematic analysis, Secondary analysis
Abstract: Background: Care partners of people with aphasia after stroke need various informational supports, such as aphasia education and resources for psychosocial support. However, informational support may vary across clinicians, and access to these supports remains a persistent unmet need. Using implementation science frameworks can help to assess the gap between what is known about an issue and what is occurring in practice. Aim: The aim was to identify barriers to providing informational support for care partners of people with aphasia after stroke. Method and Procedure: We performed a secondary analysis of qualitative data collected from two of our previous studies. New themes were identified by comparing feedback from both speech-language pathologists and care partners, and previously assigned codes were interpreted relative to the Knowledge to Action (KTA) framework. Outcomes and Results: We identified four implementation themes that were specifically related to the action cycle of the KTA framework: (a) Aphasia rehabilitation tends to exclude care partners, (b) aphasia rehabilitation can be hard to understand, (c) structure is lacking for care partner check-ins, and (d) care partner informational support rarely extends beyond the acute phases of recovery. Conclusion: The results suggest that changes are needed at both systemic and care provider levels to ensure that tailored information is provided to care partners of people with aphasia. [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
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PubType: Academic Journal
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  Data: Barriers to Informational Support for Care Partners of People With Aphasia After Stroke.
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  Data: <searchLink fieldCode="AR" term="%22Shafer%2C+Jennifer+S%2E%22">Shafer, Jennifer S.</searchLink><relatesTo>1</relatesTo><i> jennishafer@med.unc.edu</i><br /><searchLink fieldCode="AR" term="%22Haley%2C+Katarina+L%2E%22">Haley, Katarina L.</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Jacks%2C+Adam%22">Jacks, Adam</searchLink><relatesTo>2</relatesTo>
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Speech-Language+Pathology%22">American Journal of Speech-Language Pathology</searchLink>. Sep2023, Vol. 32 Issue 5, p2211-2231. 21p. 1 Diagram, 4 Charts.
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  Data: *<searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br />*<searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br />*<searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br />*<searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Professions%22">Professions</searchLink><br /><searchLink fieldCode="DE" term="%22Stroke+patients%22">Stroke patients</searchLink><br /><searchLink fieldCode="DE" term="%22Rehabilitation+of+aphasic+persons%22">Rehabilitation of aphasic persons</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Speech+therapy+education%22">Speech therapy education</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Secondary+analysis%22">Secondary analysis</searchLink>
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  Data: Background: Care partners of people with aphasia after stroke need various informational supports, such as aphasia education and resources for psychosocial support. However, informational support may vary across clinicians, and access to these supports remains a persistent unmet need. Using implementation science frameworks can help to assess the gap between what is known about an issue and what is occurring in practice. Aim: The aim was to identify barriers to providing informational support for care partners of people with aphasia after stroke. Method and Procedure: We performed a secondary analysis of qualitative data collected from two of our previous studies. New themes were identified by comparing feedback from both speech-language pathologists and care partners, and previously assigned codes were interpreted relative to the Knowledge to Action (KTA) framework. Outcomes and Results: We identified four implementation themes that were specifically related to the action cycle of the KTA framework: (a) Aphasia rehabilitation tends to exclude care partners, (b) aphasia rehabilitation can be hard to understand, (c) structure is lacking for care partner check-ins, and (d) care partner informational support rarely extends beyond the acute phases of recovery. Conclusion: The results suggest that changes are needed at both systemic and care provider levels to ensure that tailored information is provided to care partners of people with aphasia. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=171907601
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        Value: 10.1044/2023_AJSLP-22-00391
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      – SubjectFull: Comparative studies
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      – SubjectFull: Stroke patients
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      – SubjectFull: Rehabilitation of aphasic persons
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      – SubjectFull: Speech therapy education
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              Text: Sep2023
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