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"I Could Not Talk . . . She Did Everything . . . She's Now My Sister": People With Aphasia's Perspectives on Friends Who Stuck Around.

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Title: "I Could Not Talk . . . She Did Everything . . . She's Now My Sister": People With Aphasia's Perspectives on Friends Who Stuck Around.
Authors: Archer, Brent1 barcher@bgsu.edu, Azios, Jamie H.2, Douglas, Natalie F.3, Strong, Katie A.3, Worrall, Linda4, Simmons-Mackie, Nina5
Source: American Journal of Speech-Language Pathology. Jan2024, Vol. 33 Issue 1, p349-368. 20p.
Subject Terms: *Friendship, *Empathy, *Experience, *Aphasia, *Qualitative research, *Disabilities, *Communication, *Interpersonal relations, Stroke, Age distribution, Convalescence, Interviewing, Patients' attitudes, Severity of illness index, Questionnaires, Research funding, Thematic analysis, Brain injuries, Judgment sampling, Technology, Social attitudes, Disease complications
Geographic Terms: United States
Abstract: Purpose: Aphasia may decrease the capacity to develop and maintain friendships. The aim of this study was to better understand the perspectives of people with aphasia on why some friendship bonds remain strong and some do not. Furthermore, we wanted to explore how age and aphasia severity shape views on friendship. Method: We interviewed 27 people with aphasia about their experiences of friendship before and after the onset of aphasia. We then used framework analysis and reflexive thematic analysis to interpret the interview data. Results: From the interviews, we created four major themes concerning how friend relationships had been impacted by aphasia: (a) Not all bonds have the same chance of surviving the onset of aphasia; (b) people with aphasia's closest friends took active steps to keep relationships strong; (c) if friends knew some basic information about aphasia, bonds would stay stronger; (d) positive affective aspects of friendship play an important role in keeping bonds strong. We also noted differences in friendship experiences that appeared to be influenced by age and aphasia severity of participants. Conclusions: Interview data provided actionable ideas including focusing on friends who are likely to be responsive to help with maintaining the friendship, providing them with strategies to keep the friendship active and communication meaningful, and acknowledging the positive impact that this will have on the friend recovering from aphasia. More research is needed to develop programs that empower people with aphasia to maintain their friendships. [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
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  Data: "I Could Not Talk . . . She Did Everything . . . She's Now My Sister": People With Aphasia's Perspectives on Friends Who Stuck Around.
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  Data: <searchLink fieldCode="AR" term="%22Archer%2C+Brent%22">Archer, Brent</searchLink><relatesTo>1</relatesTo><i> barcher@bgsu.edu</i><br /><searchLink fieldCode="AR" term="%22Azios%2C+Jamie+H%2E%22">Azios, Jamie H.</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Douglas%2C+Natalie+F%2E%22">Douglas, Natalie F.</searchLink><relatesTo>3</relatesTo><br /><searchLink fieldCode="AR" term="%22Strong%2C+Katie+A%2E%22">Strong, Katie A.</searchLink><relatesTo>3</relatesTo><br /><searchLink fieldCode="AR" term="%22Worrall%2C+Linda%22">Worrall, Linda</searchLink><relatesTo>4</relatesTo><br /><searchLink fieldCode="AR" term="%22Simmons-Mackie%2C+Nina%22">Simmons-Mackie, Nina</searchLink><relatesTo>5</relatesTo>
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Speech-Language+Pathology%22">American Journal of Speech-Language Pathology</searchLink>. Jan2024, Vol. 33 Issue 1, p349-368. 20p.
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  Data: *<searchLink fieldCode="DE" term="%22Friendship%22">Friendship</searchLink><br />*<searchLink fieldCode="DE" term="%22Empathy%22">Empathy</searchLink><br />*<searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br />*<searchLink fieldCode="DE" term="%22Aphasia%22">Aphasia</searchLink><br />*<searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br />*<searchLink fieldCode="DE" term="%22Disabilities%22">Disabilities</searchLink><br />*<searchLink fieldCode="DE" term="%22Communication%22">Communication</searchLink><br />*<searchLink fieldCode="DE" term="%22Interpersonal+relations%22">Interpersonal relations</searchLink><br /><searchLink fieldCode="DE" term="%22Stroke%22">Stroke</searchLink><br /><searchLink fieldCode="DE" term="%22Age+distribution%22">Age distribution</searchLink><br /><searchLink fieldCode="DE" term="%22Convalescence%22">Convalescence</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Patients'+attitudes%22">Patients' attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Severity+of+illness+index%22">Severity of illness index</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Brain+injuries%22">Brain injuries</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Technology%22">Technology</searchLink><br /><searchLink fieldCode="DE" term="%22Social+attitudes%22">Social attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+complications%22">Disease complications</searchLink>
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– Name: Abstract
  Label: Abstract
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  Data: Purpose: Aphasia may decrease the capacity to develop and maintain friendships. The aim of this study was to better understand the perspectives of people with aphasia on why some friendship bonds remain strong and some do not. Furthermore, we wanted to explore how age and aphasia severity shape views on friendship. Method: We interviewed 27 people with aphasia about their experiences of friendship before and after the onset of aphasia. We then used framework analysis and reflexive thematic analysis to interpret the interview data. Results: From the interviews, we created four major themes concerning how friend relationships had been impacted by aphasia: (a) Not all bonds have the same chance of surviving the onset of aphasia; (b) people with aphasia's closest friends took active steps to keep relationships strong; (c) if friends knew some basic information about aphasia, bonds would stay stronger; (d) positive affective aspects of friendship play an important role in keeping bonds strong. We also noted differences in friendship experiences that appeared to be influenced by age and aphasia severity of participants. Conclusions: Interview data provided actionable ideas including focusing on friends who are likely to be responsive to help with maintaining the friendship, providing them with strategies to keep the friendship active and communication meaningful, and acknowledging the positive impact that this will have on the friend recovering from aphasia. More research is needed to develop programs that empower people with aphasia to maintain their friendships. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=174676408
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      – Type: doi
        Value: 10.1044/2023_AJSLP-23-00205
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      – Code: eng
        Text: English
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        StartPage: 349
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      – SubjectFull: Friendship
        Type: general
      – SubjectFull: Empathy
        Type: general
      – SubjectFull: Experience
        Type: general
      – SubjectFull: Aphasia
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Disabilities
        Type: general
      – SubjectFull: Communication
        Type: general
      – SubjectFull: Interpersonal relations
        Type: general
      – SubjectFull: Stroke
        Type: general
      – SubjectFull: Age distribution
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      – SubjectFull: Severity of illness index
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      – SubjectFull: Questionnaires
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      – SubjectFull: Research funding
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      – SubjectFull: Thematic analysis
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      – SubjectFull: Brain injuries
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      – SubjectFull: Judgment sampling
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              Text: Jan2024
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