Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life.
Saved in:
| Title: | Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life. |
|---|---|
| Authors: | Thomas, Sangeetha1 (AUTHOR) thomassa@deakin.edu.au, Ryan, Nicholas P1,2 (AUTHOR), Byrne, Linda K1,3 (AUTHOR), Hendrieckx, Christel1,4,5 (AUTHOR), White, Victoria1,6 (AUTHOR) |
| Source: | Journal of Pediatric Psychology. Jan2024, Vol. 49 Issue 1, p45-55. 11p. |
| Subject Terms: | *Parent-child relationships, *Quality of life, *Child care, *Children's health, *Parents, *Chronic diseases, Psychological distress |
| Abstract: | Objective To assess parent psychological distress in families of children with common chronic health conditions (CHC) and to explore relationships between parent psychological distress, unmet supportive care needs and children's quality of life (QoL). Method Cross-sectional study involving parents of children diagnosed with a common CHC between 0 and 12 years of age and who had received treatment within the last 5 years. Eligible parents completed an online survey, that included the Depression Anxiety Stress Scale (DASS-21) assessing distress in parents and a 34-item assessment of unmet supportive care needs across 6 domains. Parents completed ratings of their child's current functioning (QoL) using the 23-item PedsQL. Multivariable regression models examined the relative association between unmet needs, children's QoL and parents' depression, anxiety, and stress. Results The sample consisted of 194 parents of children with congenital heart disease (n =97; 50%), diabetes (n =50; 26%), cancer (n =39; 20%), and asthma (n =8; 4%). A significant proportion of parents had moderate–severe symptoms of depression (26%), anxiety (38%), and stress (40%). Of the PedsQL scales, the poorest outcomes were found for emotional and school functioning. Multivariable analyses showed that both higher unmet needs and poorer child emotional functioning were associated with parent depression, anxiety, and stress symptoms. Conclusion Evidence linking parent distress symptoms to higher unmet needs and poorer child emotional functioning suggests these factors may be targets for interventions to alleviate parent distress. Longitudinal research using larger samples is required to replicate findings, and clarify the magnitude and direction of associations. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Pediatric Psychology is the property of Oxford University Press / USA and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Education Research Complete |
|
Full text is not displayed to guests.
Login for full access.
|
|
| FullText | Links: – Type: pdflink Text: Availability: 1 |
|---|---|
| Header | DbId: ehh DbLabel: Education Research Complete An: 174909764 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Thomas%2C+Sangeetha%22">Thomas, Sangeetha</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> thomassa@deakin.edu.au</i><br /><searchLink fieldCode="AR" term="%22Ryan%2C+Nicholas+P%22">Ryan, Nicholas P</searchLink><relatesTo>1,2</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Byrne%2C+Linda+K%22">Byrne, Linda K</searchLink><relatesTo>1,3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Hendrieckx%2C+Christel%22">Hendrieckx, Christel</searchLink><relatesTo>1,4,5</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22White%2C+Victoria%22">White, Victoria</searchLink><relatesTo>1,6</relatesTo> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Journal+of+Pediatric+Psychology%22">Journal of Pediatric Psychology</searchLink>. Jan2024, Vol. 49 Issue 1, p45-55. 11p. – Name: Subject Label: Subject Terms Group: Su Data: *<searchLink fieldCode="DE" term="%22Parent-child+relationships%22">Parent-child relationships</searchLink><br />*<searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br />*<searchLink fieldCode="DE" term="%22Child+care%22">Child care</searchLink><br />*<searchLink fieldCode="DE" term="%22Children's+health%22">Children's health</searchLink><br />*<searchLink fieldCode="DE" term="%22Parents%22">Parents</searchLink><br />*<searchLink fieldCode="DE" term="%22Chronic+diseases%22">Chronic diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+distress%22">Psychological distress</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Objective To assess parent psychological distress in families of children with common chronic health conditions (CHC) and to explore relationships between parent psychological distress, unmet supportive care needs and children's quality of life (QoL). Method Cross-sectional study involving parents of children diagnosed with a common CHC between 0 and 12 years of age and who had received treatment within the last 5 years. Eligible parents completed an online survey, that included the Depression Anxiety Stress Scale (DASS-21) assessing distress in parents and a 34-item assessment of unmet supportive care needs across 6 domains. Parents completed ratings of their child's current functioning (QoL) using the 23-item PedsQL. Multivariable regression models examined the relative association between unmet needs, children's QoL and parents' depression, anxiety, and stress. Results The sample consisted of 194 parents of children with congenital heart disease (n =97; 50%), diabetes (n =50; 26%), cancer (n =39; 20%), and asthma (n =8; 4%). A significant proportion of parents had moderate–severe symptoms of depression (26%), anxiety (38%), and stress (40%). Of the PedsQL scales, the poorest outcomes were found for emotional and school functioning. Multivariable analyses showed that both higher unmet needs and poorer child emotional functioning were associated with parent depression, anxiety, and stress symptoms. Conclusion Evidence linking parent distress symptoms to higher unmet needs and poorer child emotional functioning suggests these factors may be targets for interventions to alleviate parent distress. Longitudinal research using larger samples is required to replicate findings, and clarify the magnitude and direction of associations. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Journal of Pediatric Psychology is the property of Oxford University Press / USA and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=174909764 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1093/jpepsy/jsad074 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 11 StartPage: 45 Subjects: – SubjectFull: Parent-child relationships Type: general – SubjectFull: Quality of life Type: general – SubjectFull: Child care Type: general – SubjectFull: Children's health Type: general – SubjectFull: Parents Type: general – SubjectFull: Chronic diseases Type: general – SubjectFull: Psychological distress Type: general Titles: – TitleFull: Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Thomas, Sangeetha – PersonEntity: Name: NameFull: Ryan, Nicholas P – PersonEntity: Name: NameFull: Byrne, Linda K – PersonEntity: Name: NameFull: Hendrieckx, Christel – PersonEntity: Name: NameFull: White, Victoria IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Text: Jan2024 Type: published Y: 2024 Identifiers: – Type: issn-print Value: 01468693 Numbering: – Type: volume Value: 49 – Type: issue Value: 1 Titles: – TitleFull: Journal of Pediatric Psychology Type: main |
| ResultId | 1 |
