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Moving Toward Anti-Ableist Practices in Aphasia Rehabilitation and Research: A Viewpoint.

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Title: Moving Toward Anti-Ableist Practices in Aphasia Rehabilitation and Research: A Viewpoint.
Authors: Nunn, Kristen1 kristen.nunn@va.gov, Tilton-Bolowsky, Victoria2, Kershenbaum, Ayelet M.3
Source: American Journal of Speech-Language Pathology. Sep2024, Vol. 33 Issue 5, p2687-2697. 11p.
Subject Terms: *Attitudes toward disabilities, *Social norms, *Experience, *Communicative disorders, *Quality of life, *Communication, *Discrimination against people with disabilities, *Discrimination (Sociology), *People with disabilities, Rehabilitation of aphasic persons, Social factors, Social change, Social integration, Medical research, Social stigma
Abstract: Purpose: Ableism is a pervasive set of beliefs that regard nondisabled bodies and minds as ideal and necessary to live a full life. Ableism manifests for people with aphasia as stigma and discrimination based on their language ability. We assert that ableism contributes to decreased quality of life for people with aphasia and should be actively challenged and disrupted by clinicians and researchers in the field. Method: We applied the Health Stigma and Discrimination Framework (HSDF) to outline how stigma and discrimination are perpetuated against people with aphasia on the basis of language ability and their downstream health and social consequences. We presented this framework at the Clinical Aphasiology Conference in 2023 and share themes and challenges that arose from this discussion and from our ongoing learning. Discussion: Applying the HSDF to aphasia outlined potential sequelae of ableism. We identified preliminary foci of future initiatives aimed at challenging ableist beliefs and practices and means to monitor the effectiveness of such interventions. Furthermore, we draw attention to the seeming tension between antiableist practices and traditional language rehabilitation goals. We assert that this tension may be a catalyst for fruitful discourse on how clinicians and researchers can resist ableism while honoring the lived experiences of people with aphasia and their goals for language rehabilitation. These discussions may be facilitated by existing models in disability studies (e.g., the political/relational model). Conclusions: Clinicians and researchers are well positioned to challenge ableism and minimize the resultant health and social impacts for people living with aphasia. Anti-ableist practices are not antithetical to aphasia rehabilitation and can be thoughtfully integrated into rehabilitation practices and discourse. [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
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  Data: Moving Toward Anti-Ableist Practices in Aphasia Rehabilitation and Research: A Viewpoint.
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  Data: <searchLink fieldCode="AR" term="%22Nunn%2C+Kristen%22">Nunn, Kristen</searchLink><relatesTo>1</relatesTo><i> kristen.nunn@va.gov</i><br /><searchLink fieldCode="AR" term="%22Tilton-Bolowsky%2C+Victoria%22">Tilton-Bolowsky, Victoria</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Kershenbaum%2C+Ayelet+M%2E%22">Kershenbaum, Ayelet M.</searchLink><relatesTo>3</relatesTo>
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Speech-Language+Pathology%22">American Journal of Speech-Language Pathology</searchLink>. Sep2024, Vol. 33 Issue 5, p2687-2697. 11p.
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  Data: *<searchLink fieldCode="DE" term="%22Attitudes+toward+disabilities%22">Attitudes toward disabilities</searchLink><br />*<searchLink fieldCode="DE" term="%22Social+norms%22">Social norms</searchLink><br />*<searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br />*<searchLink fieldCode="DE" term="%22Communicative+disorders%22">Communicative disorders</searchLink><br />*<searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br />*<searchLink fieldCode="DE" term="%22Communication%22">Communication</searchLink><br />*<searchLink fieldCode="DE" term="%22Discrimination+against+people+with+disabilities%22">Discrimination against people with disabilities</searchLink><br />*<searchLink fieldCode="DE" term="%22Discrimination+%28Sociology%29%22">Discrimination (Sociology)</searchLink><br />*<searchLink fieldCode="DE" term="%22People+with+disabilities%22">People with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Rehabilitation+of+aphasic+persons%22">Rehabilitation of aphasic persons</searchLink><br /><searchLink fieldCode="DE" term="%22Social+factors%22">Social factors</searchLink><br /><searchLink fieldCode="DE" term="%22Social+change%22">Social change</searchLink><br /><searchLink fieldCode="DE" term="%22Social+integration%22">Social integration</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+research%22">Medical research</searchLink><br /><searchLink fieldCode="DE" term="%22Social+stigma%22">Social stigma</searchLink>
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  Data: Purpose: Ableism is a pervasive set of beliefs that regard nondisabled bodies and minds as ideal and necessary to live a full life. Ableism manifests for people with aphasia as stigma and discrimination based on their language ability. We assert that ableism contributes to decreased quality of life for people with aphasia and should be actively challenged and disrupted by clinicians and researchers in the field. Method: We applied the Health Stigma and Discrimination Framework (HSDF) to outline how stigma and discrimination are perpetuated against people with aphasia on the basis of language ability and their downstream health and social consequences. We presented this framework at the Clinical Aphasiology Conference in 2023 and share themes and challenges that arose from this discussion and from our ongoing learning. Discussion: Applying the HSDF to aphasia outlined potential sequelae of ableism. We identified preliminary foci of future initiatives aimed at challenging ableist beliefs and practices and means to monitor the effectiveness of such interventions. Furthermore, we draw attention to the seeming tension between antiableist practices and traditional language rehabilitation goals. We assert that this tension may be a catalyst for fruitful discourse on how clinicians and researchers can resist ableism while honoring the lived experiences of people with aphasia and their goals for language rehabilitation. These discussions may be facilitated by existing models in disability studies (e.g., the political/relational model). Conclusions: Clinicians and researchers are well positioned to challenge ableism and minimize the resultant health and social impacts for people living with aphasia. Anti-ableist practices are not antithetical to aphasia rehabilitation and can be thoughtfully integrated into rehabilitation practices and discourse. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1044/2024_AJSLP-23-00456
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      – SubjectFull: Social norms
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      – SubjectFull: Experience
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      – SubjectFull: Communicative disorders
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      – SubjectFull: Quality of life
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              Text: Sep2024
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