Communication, Socialization, and Literacy for Adults With Developmental Disabilities: An Interview Study of Parents’ Perspectives and Experiences.
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| Title: | Communication, Socialization, and Literacy for Adults With Developmental Disabilities: An Interview Study of Parents’ Perspectives and Experiences. |
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| Authors: | Sojung Kim1, Hee-Tae Jung2 heetjung@iu.edu, Sunjung Kim Thao3 |
| Source: | American Journal of Speech-Language Pathology. Nov2024, Vol. 33 Issue 6, p3051-3068. 18p. |
| Subject Terms: | *Parent attitudes, *Developmental disabilities, *Experience, *Communication, *Literacy, *Adults, Descriptive statistics, Thematic analysis, Medical needs assessment, Data analysis software, Social support, Socialization, Disease complications |
| Abstract: | Purpose: The study highlights the significance of continuous support and services in communication, socialization, and literacy skills for adults with developmental disabilities (DDs). The aim of the study was to gather in-depth information on the individualized needs, lived experiences, and expectations of adults with DD by interviewing their parents. Method: A total of 14 parents of adults with DD participated in one-on-one semistructured interviews. During the interviews, parents were asked to describe (a) their children’s current communication, socialization, reading and writing skills; (b) the types of communication, socialization, and literacy support their children were receiving; and (c) the types of support that their children needed. Interviews were video- and audio-recorded, transcribed, and analyzed qualitatively using thematic analysis. Results: Thematic analysis revealed three main themes and eight subthemes: (1) insufficient support and services for adults with DD (i.e., lack of competent professionals and lack of literacy support), (2) approaches that the parents attempted for their children with DD (i.e., parents’ responsibilities, technologies, and pseudoscience), and (3) recommendations for ongoing support and services (i.e., novel technologies, social media, and motivation). Conclusions: The study highlights crucial gaps between the participating parents’ desire for individualized, consistent, and innovative support and services for their adult children with DD and scarcity of resources in communication, socialization, and literacy. The dearth of evidence-based support and resources leads to easy access to pseudoscience. Future research is warranted to develop innovative, customized, and highly motivating programs in communication, socialization, and literacy for adults with DD. [ABSTRACT FROM AUTHOR] |
| Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Education Research Complete |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: ehh DbLabel: Education Research Complete An: 180662868 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Communication, Socialization, and Literacy for Adults With Developmental Disabilities: An Interview Study of Parents’ Perspectives and Experiences. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Sojung+Kim%22">Sojung Kim</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Hee-Tae+Jung%22">Hee-Tae Jung</searchLink><relatesTo>2</relatesTo><i> heetjung@iu.edu</i><br /><searchLink fieldCode="AR" term="%22Sunjung+Kim+Thao%22">Sunjung Kim Thao</searchLink><relatesTo>3</relatesTo> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Speech-Language+Pathology%22">American Journal of Speech-Language Pathology</searchLink>. Nov2024, Vol. 33 Issue 6, p3051-3068. 18p. – Name: Subject Label: Subject Terms Group: Su Data: *<searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br />*<searchLink fieldCode="DE" term="%22Developmental+disabilities%22">Developmental disabilities</searchLink><br />*<searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br />*<searchLink fieldCode="DE" term="%22Communication%22">Communication</searchLink><br />*<searchLink fieldCode="DE" term="%22Literacy%22">Literacy</searchLink><br />*<searchLink fieldCode="DE" term="%22Adults%22">Adults</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+needs+assessment%22">Medical needs assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Socialization%22">Socialization</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+complications%22">Disease complications</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose: The study highlights the significance of continuous support and services in communication, socialization, and literacy skills for adults with developmental disabilities (DDs). The aim of the study was to gather in-depth information on the individualized needs, lived experiences, and expectations of adults with DD by interviewing their parents. Method: A total of 14 parents of adults with DD participated in one-on-one semistructured interviews. During the interviews, parents were asked to describe (a) their children’s current communication, socialization, reading and writing skills; (b) the types of communication, socialization, and literacy support their children were receiving; and (c) the types of support that their children needed. Interviews were video- and audio-recorded, transcribed, and analyzed qualitatively using thematic analysis. Results: Thematic analysis revealed three main themes and eight subthemes: (1) insufficient support and services for adults with DD (i.e., lack of competent professionals and lack of literacy support), (2) approaches that the parents attempted for their children with DD (i.e., parents’ responsibilities, technologies, and pseudoscience), and (3) recommendations for ongoing support and services (i.e., novel technologies, social media, and motivation). Conclusions: The study highlights crucial gaps between the participating parents’ desire for individualized, consistent, and innovative support and services for their adult children with DD and scarcity of resources in communication, socialization, and literacy. The dearth of evidence-based support and resources leads to easy access to pseudoscience. Future research is warranted to develop innovative, customized, and highly motivating programs in communication, socialization, and literacy for adults with DD. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1044/2024_AJSLP-24-00177 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 18 StartPage: 3051 Subjects: – SubjectFull: Parent attitudes Type: general – SubjectFull: Developmental disabilities Type: general – SubjectFull: Experience Type: general – SubjectFull: Communication Type: general – SubjectFull: Literacy Type: general – SubjectFull: Adults Type: general – SubjectFull: Descriptive statistics Type: general – SubjectFull: Thematic analysis Type: general – SubjectFull: Medical needs assessment Type: general – SubjectFull: Data analysis software Type: general – SubjectFull: Social support Type: general – SubjectFull: Socialization Type: general – SubjectFull: Disease complications Type: general Titles: – TitleFull: Communication, Socialization, and Literacy for Adults With Developmental Disabilities: An Interview Study of Parents’ Perspectives and Experiences. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Sojung Kim – PersonEntity: Name: NameFull: Hee-Tae Jung – PersonEntity: Name: NameFull: Sunjung Kim Thao IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 11 Text: Nov2024 Type: published Y: 2024 Identifiers: – Type: issn-print Value: 10580360 Numbering: – Type: volume Value: 33 – Type: issue Value: 6 Titles: – TitleFull: American Journal of Speech-Language Pathology Type: main |
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