Dying a 'Good' Death: The Work, Care, and Support of End-of-Life Doulas.

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Title: Dying a 'Good' Death: The Work, Care, and Support of End-of-Life Doulas.
Authors: Dellinger Page, Amy1 pagead@appstate.edu, Husain, Jonelle H.1, Kvanvig, Ashley M.1
Source: Omega: Journal of Death & Dying. Jun2025, Vol. 91 Issue 2, p932-954. 23p.
Subject Terms: *Occupational roles, *Research methodology, *Interpersonal relations, *Family support, *Experiential learning, Death & psychology, Doulas, Work, Attitudes toward death, Palliative treatment, Questionnaires, Interviewing, Terminal care, Social support, Terminally ill, Psychosocial factors, Time
Abstract: End-of-life doulas (EOLDs) are a growing population of care providers who focus on the wishes of the dying person in order to cultivate an environment of comfort, peace, and support from the point of terminal diagnosis, during the dying process, and following death. The purpose of this study was to document the time commitment of EOLDs to dying persons and their loved ones during the dying process, as well as their experiences navigating family dynamics working towards increased acceptance of death. A mixed-methods approach was utilized to gather data on EOLDs, consisting of a quantitative survey with 618 respondents and subsequent qualitative interviews conducted with 39 participants. Results indicated that the amount of time spent with dying persons and their loved ones varies widely and often depends on when the EOLD is contracted regarding services. Factors that impede and lead to great acceptance of death are discussed as well as the role of EOLDs in navigating family dynamics. [ABSTRACT FROM AUTHOR]
Copyright of Omega: Journal of Death & Dying is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Dying a 'Good' Death: The Work, Care, and Support of End-of-Life Doulas.
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  Data: <searchLink fieldCode="AR" term="%22Dellinger+Page%2C+Amy%22">Dellinger Page, Amy</searchLink><relatesTo>1</relatesTo><i> pagead@appstate.edu</i><br /><searchLink fieldCode="AR" term="%22Husain%2C+Jonelle+H%2E%22">Husain, Jonelle H.</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Kvanvig%2C+Ashley+M%2E%22">Kvanvig, Ashley M.</searchLink><relatesTo>1</relatesTo>
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  Data: <searchLink fieldCode="JN" term="%22Omega%3A+Journal+of+Death+%26+Dying%22">Omega: Journal of Death & Dying</searchLink>. Jun2025, Vol. 91 Issue 2, p932-954. 23p.
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  Data: *<searchLink fieldCode="DE" term="%22Occupational+roles%22">Occupational roles</searchLink><br />*<searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br />*<searchLink fieldCode="DE" term="%22Interpersonal+relations%22">Interpersonal relations</searchLink><br />*<searchLink fieldCode="DE" term="%22Family+support%22">Family support</searchLink><br />*<searchLink fieldCode="DE" term="%22Experiential+learning%22">Experiential learning</searchLink><br /><searchLink fieldCode="DE" term="%22Death+%26+psychology%22">Death & psychology</searchLink><br /><searchLink fieldCode="DE" term="%22Doulas%22">Doulas</searchLink><br /><searchLink fieldCode="DE" term="%22Work%22">Work</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+toward+death%22">Attitudes toward death</searchLink><br /><searchLink fieldCode="DE" term="%22Palliative+treatment%22">Palliative treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Terminal+care%22">Terminal care</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Terminally+ill%22">Terminally ill</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Time%22">Time</searchLink>
– Name: Abstract
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  Data: End-of-life doulas (EOLDs) are a growing population of care providers who focus on the wishes of the dying person in order to cultivate an environment of comfort, peace, and support from the point of terminal diagnosis, during the dying process, and following death. The purpose of this study was to document the time commitment of EOLDs to dying persons and their loved ones during the dying process, as well as their experiences navigating family dynamics working towards increased acceptance of death. A mixed-methods approach was utilized to gather data on EOLDs, consisting of a quantitative survey with 618 respondents and subsequent qualitative interviews conducted with 39 participants. Results indicated that the amount of time spent with dying persons and their loved ones varies widely and often depends on when the EOLD is contracted regarding services. Factors that impede and lead to great acceptance of death are discussed as well as the role of EOLDs in navigating family dynamics. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Group: Ab
  Data: <i>Copyright of Omega: Journal of Death & Dying is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1177/00302228221145798
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 23
        StartPage: 932
    Subjects:
      – SubjectFull: Occupational roles
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Interpersonal relations
        Type: general
      – SubjectFull: Family support
        Type: general
      – SubjectFull: Experiential learning
        Type: general
      – SubjectFull: Death & psychology
        Type: general
      – SubjectFull: Doulas
        Type: general
      – SubjectFull: Work
        Type: general
      – SubjectFull: Attitudes toward death
        Type: general
      – SubjectFull: Palliative treatment
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Terminal care
        Type: general
      – SubjectFull: Social support
        Type: general
      – SubjectFull: Terminally ill
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Time
        Type: general
    Titles:
      – TitleFull: Dying a 'Good' Death: The Work, Care, and Support of End-of-Life Doulas.
        Type: main
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            NameFull: Dellinger Page, Amy
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          Name:
            NameFull: Husain, Jonelle H.
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            NameFull: Kvanvig, Ashley M.
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            – D: 01
              M: 06
              Text: Jun2025
              Type: published
              Y: 2025
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              Value: 91
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            – TitleFull: Omega: Journal of Death & Dying
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