Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals.

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Title: Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals.
Authors: Li, Chak1 (AUTHOR) chak.li@vanderbilt.edu, Burke, Meghan M.1 (AUTHOR), Arnold, Catherine K.2 (AUTHOR)
Source: Intellectual & Developmental Disabilities. Dec2025, Vol. 63 Issue 6, p498-511. 14p.
Subject Terms: *Siblings, *Autism, *Community support, *Disabilities, Pressure groups, Social advocacy, Self advocacy
Abstract: Extensive research has focused on parent advocacy, but the advocacy efforts of siblings of autistic individuals remain less studied. This study aims to identify the correlates of individual and systemic advocacy among siblings of autistic individuals. Using a national survey, 256 adult siblings of autistic individuals indicated their advocacy activities. Descriptive statistics and hierarchical regressions were used for analyses. Results indicated that, although siblings often engaged in both individual and systemic advocacy, they present as distinct constructs with varying correlates. Older siblings who engaged in future planning and/or were knowledgeable about disability policy were more likely to conduct individual advocacy. Systemic advocacy was greater among siblings more connected to the disability community and had reciprocal exchanges of tangible support. [ABSTRACT FROM AUTHOR]
Copyright of Intellectual & Developmental Disabilities is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals.
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  Data: <searchLink fieldCode="AR" term="%22Li%2C+Chak%22">Li, Chak</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> chak.li@vanderbilt.edu</i><br /><searchLink fieldCode="AR" term="%22Burke%2C+Meghan+M%2E%22">Burke, Meghan M.</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Arnold%2C+Catherine+K%2E%22">Arnold, Catherine K.</searchLink><relatesTo>2</relatesTo> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Intellectual+%26+Developmental+Disabilities%22">Intellectual & Developmental Disabilities</searchLink>. Dec2025, Vol. 63 Issue 6, p498-511. 14p.
– Name: Subject
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  Data: *<searchLink fieldCode="DE" term="%22Siblings%22">Siblings</searchLink><br />*<searchLink fieldCode="DE" term="%22Autism%22">Autism</searchLink><br />*<searchLink fieldCode="DE" term="%22Community+support%22">Community support</searchLink><br />*<searchLink fieldCode="DE" term="%22Disabilities%22">Disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Pressure+groups%22">Pressure groups</searchLink><br /><searchLink fieldCode="DE" term="%22Social+advocacy%22">Social advocacy</searchLink><br /><searchLink fieldCode="DE" term="%22Self+advocacy%22">Self advocacy</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Extensive research has focused on parent advocacy, but the advocacy efforts of siblings of autistic individuals remain less studied. This study aims to identify the correlates of individual and systemic advocacy among siblings of autistic individuals. Using a national survey, 256 adult siblings of autistic individuals indicated their advocacy activities. Descriptive statistics and hierarchical regressions were used for analyses. Results indicated that, although siblings often engaged in both individual and systemic advocacy, they present as distinct constructs with varying correlates. Older siblings who engaged in future planning and/or were knowledgeable about disability policy were more likely to conduct individual advocacy. Systemic advocacy was greater among siblings more connected to the disability community and had reciprocal exchanges of tangible support. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Intellectual & Developmental Disabilities is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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        Value: 10.1352/1934-9556-63.6.498
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      – Code: eng
        Text: English
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        PageCount: 14
        StartPage: 498
    Subjects:
      – SubjectFull: Siblings
        Type: general
      – SubjectFull: Autism
        Type: general
      – SubjectFull: Community support
        Type: general
      – SubjectFull: Disabilities
        Type: general
      – SubjectFull: Pressure groups
        Type: general
      – SubjectFull: Social advocacy
        Type: general
      – SubjectFull: Self advocacy
        Type: general
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      – TitleFull: Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals.
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            NameFull: Burke, Meghan M.
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            NameFull: Arnold, Catherine K.
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            – D: 01
              M: 12
              Text: Dec2025
              Type: published
              Y: 2025
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