View in EDS HTML Full Text PDF Full Text

Fetal alcohol spectrum disorder diagnostic clinics in Canada: "It wouldn't happen if nobody wanted it to happen".

Saved in:
Bibliographic Details
Title: Fetal alcohol spectrum disorder diagnostic clinics in Canada: "It wouldn't happen if nobody wanted it to happen".
Authors: Harding, Kelly D.1,2,3 (AUTHOR) kelly.harding@canfasd.ca, Flannigan, Katherine3,4 (AUTHOR), Burns, Colleen5 (AUTHOR), Unsworth, Kathy3 (AUTHOR), McFarlane, Audrey3 (AUTHOR)
Source: Journal of Intellectual & Developmental Disability. Mar2026, Vol. 51 Issue 1, p115-125. 11p.
Subject Terms: *Health services accessibility, *Policy sciences, *Human services programs, *Qualitative research, *Interprofessional relations, *Fetal alcohol syndrome, *Research methodology, *Theory of knowledge, *Comparative studies, Medical care use, Interviewing, Descriptive statistics, Mentoring, Judgment sampling, Thematic analysis, Public relations, Maternal-fetal exchange, Medical needs assessment, Health care teams
Geographic Terms: Canada
Abstract: Background: We address the question: If you wanted to start a fetal alcohol spectrum disorder (FASD) diagnostic clinic, what would you need to do, think about, and plan for, from a policy perspective? Our aims were to understand how clinics are developed and established and the key factors that facilitate their success. Method: Within a pragmatist epistemology, we conducted a basic qualitative study using semistructured interviews. Interviews were conducted with 12 key informants from 10 diagnostic clinics. Data were analysed using iterative thematic analysis. Results: We derived five themes pertaining to our objectives: (i) listening and responding to your community; (ii) community buy-in and practical steps; (iii) multidisciplinary team trust, respect, and collaboration; (iv) the clinic coordinator; and (v) promoting uniqueness and learning from each other. Conclusions: Our findings demonstrated the importance of local, community-based planning, team cohesion, and opportunities for mentorship in the development of new FASD clinical services. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Intellectual & Developmental Disability is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: ehh
DbLabel: Education Research Complete
An: 192006720
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Fetal alcohol spectrum disorder diagnostic clinics in Canada: "It wouldn't happen if nobody wanted it to happen".
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Harding%2C+Kelly+D%2E%22">Harding, Kelly D.</searchLink><relatesTo>1,2,3</relatesTo> (AUTHOR)<i> kelly.harding@canfasd.ca</i><br /><searchLink fieldCode="AR" term="%22Flannigan%2C+Katherine%22">Flannigan, Katherine</searchLink><relatesTo>3,4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Burns%2C+Colleen%22">Burns, Colleen</searchLink><relatesTo>5</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Unsworth%2C+Kathy%22">Unsworth, Kathy</searchLink><relatesTo>3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22McFarlane%2C+Audrey%22">McFarlane, Audrey</searchLink><relatesTo>3</relatesTo> (AUTHOR)
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Journal+of+Intellectual+%26+Developmental+Disability%22">Journal of Intellectual & Developmental Disability</searchLink>. Mar2026, Vol. 51 Issue 1, p115-125. 11p.
– Name: Subject
  Label: Subject Terms
  Group: Su
  Data: *<searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br />*<searchLink fieldCode="DE" term="%22Policy+sciences%22">Policy sciences</searchLink><br />*<searchLink fieldCode="DE" term="%22Human+services+programs%22">Human services programs</searchLink><br />*<searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br />*<searchLink fieldCode="DE" term="%22Interprofessional+relations%22">Interprofessional relations</searchLink><br />*<searchLink fieldCode="DE" term="%22Fetal+alcohol+syndrome%22">Fetal alcohol syndrome</searchLink><br />*<searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br />*<searchLink fieldCode="DE" term="%22Theory+of+knowledge%22">Theory of knowledge</searchLink><br />*<searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care+use%22">Medical care use</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Mentoring%22">Mentoring</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Public+relations%22">Public relations</searchLink><br /><searchLink fieldCode="DE" term="%22Maternal-fetal+exchange%22">Maternal-fetal exchange</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+needs+assessment%22">Medical needs assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Health+care+teams%22">Health care teams</searchLink>
– Name: SubjectGeographic
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Canada%22">Canada</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: We address the question: If you wanted to start a fetal alcohol spectrum disorder (FASD) diagnostic clinic, what would you need to do, think about, and plan for, from a policy perspective? Our aims were to understand how clinics are developed and established and the key factors that facilitate their success. Method: Within a pragmatist epistemology, we conducted a basic qualitative study using semistructured interviews. Interviews were conducted with 12 key informants from 10 diagnostic clinics. Data were analysed using iterative thematic analysis. Results: We derived five themes pertaining to our objectives: (i) listening and responding to your community; (ii) community buy-in and practical steps; (iii) multidisciplinary team trust, respect, and collaboration; (iv) the clinic coordinator; and (v) promoting uniqueness and learning from each other. Conclusions: Our findings demonstrated the importance of local, community-based planning, team cohesion, and opportunities for mentorship in the development of new FASD clinical services. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Journal of Intellectual & Developmental Disability is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=192006720
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.3109/13668250.2025.2508619
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 11
        StartPage: 115
    Subjects:
      – SubjectFull: Health services accessibility
        Type: general
      – SubjectFull: Policy sciences
        Type: general
      – SubjectFull: Human services programs
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Interprofessional relations
        Type: general
      – SubjectFull: Fetal alcohol syndrome
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Theory of knowledge
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Medical care use
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Mentoring
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Public relations
        Type: general
      – SubjectFull: Maternal-fetal exchange
        Type: general
      – SubjectFull: Medical needs assessment
        Type: general
      – SubjectFull: Health care teams
        Type: general
      – SubjectFull: Canada
        Type: general
    Titles:
      – TitleFull: Fetal alcohol spectrum disorder diagnostic clinics in Canada: "It wouldn't happen if nobody wanted it to happen".
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Harding, Kelly D.
      – PersonEntity:
          Name:
            NameFull: Flannigan, Katherine
      – PersonEntity:
          Name:
            NameFull: Burns, Colleen
      – PersonEntity:
          Name:
            NameFull: Unsworth, Kathy
      – PersonEntity:
          Name:
            NameFull: McFarlane, Audrey
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 03
              Text: Mar2026
              Type: published
              Y: 2026
          Identifiers:
            – Type: issn-print
              Value: 13668250
          Numbering:
            – Type: volume
              Value: 51
            – Type: issue
              Value: 1
          Titles:
            – TitleFull: Journal of Intellectual & Developmental Disability
              Type: main
ResultId 1