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Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.

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Title: Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.
Authors: Moya-Galé, Gemma1 gm2446@tc.columbia.edu, Fernández, Isabel Figueroa2, González, Xena1, Manosalvas, Kiara2, Agin-Liebes, Julian3
Source: American Journal of Speech-Language Pathology. Mar2026, Vol. 35 Issue 2, p621-637. 17p.
Subject Terms: *Focus groups, *Hispanic Americans, *Psychoeducation, *Communication, *Interpersonal relations, *Caregiver attitudes, *COVID-19 pandemic, *Cultural pluralism, Support groups, Mental health, Stereotypes, Research funding, Spouses, Statistical sampling, Parkinson's disease, Financial stress, Thematic analysis, Data analysis software, Video recording, Disease progression
Abstract: Purpose: Care partners of individuals with Parkinson's disease (PD) navigate unique challenges that may impact their overall quality of life. Although some of these experiences may reflect a universal component of the disease, driven by motor and nonmotor symptoms of PD, care partner perceptions may also reflect culture-dependent values. The purpose of this study was to examine how Hispanic/Latiné care partners of individuals with PD experienced communication, social connectedness, and mental health in their relationship with their loved one with PD with the ultimate goal of establishing initial guidelines for the development of culturally responsive support groups for this population. Method: Fifteen Hispanic/Latiné care partners of people with PD participated in six focus groups. Transcripts of the video-recorded groups were analyzed qualitatively using thematic analysis. Results: Four themes were generated from this data set. Overall, care partners perceived burden as a multifaceted construct involving emotional, financial, and societal strains. Care partners implemented strategies that enhanced communicative interactions with their loved ones and served as their own coping mechanism against the progressive nature of the disease. Cultural influences on PD management and the social and mental health impact of the COVID-19 pandemic also represented key themes in this study. Conclusions: Education is an empowering resource to not only navigate difficult emotions, such as uncertainty, but also debunk societal stereotyping and facilitate open communication within the relationship. The research highlighted the significance of culturally affirming services, as many participants shared experiences of medical and psychological services lacking cultural responsiveness. Guidelines for culturally responsive support groups for Hispanic/Latiné care partners should directly target psychoeducation on PD and on disease management as well as advocacy. Special consideration should be given to the needs of Hispanic/Latiné female care partners. [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
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  Data: Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.
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  Data: <searchLink fieldCode="AR" term="%22Moya-Galé%2C+Gemma%22">Moya-Galé, Gemma</searchLink><relatesTo>1</relatesTo><i> gm2446@tc.columbia.edu</i><br /><searchLink fieldCode="AR" term="%22Fernández%2C+Isabel+Figueroa%22">Fernández, Isabel Figueroa</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22González%2C+Xena%22">González, Xena</searchLink><relatesTo>1</relatesTo><br /><searchLink fieldCode="AR" term="%22Manosalvas%2C+Kiara%22">Manosalvas, Kiara</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Agin-Liebes%2C+Julian%22">Agin-Liebes, Julian</searchLink><relatesTo>3</relatesTo>
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Speech-Language+Pathology%22">American Journal of Speech-Language Pathology</searchLink>. Mar2026, Vol. 35 Issue 2, p621-637. 17p.
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– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Care partners of individuals with Parkinson's disease (PD) navigate unique challenges that may impact their overall quality of life. Although some of these experiences may reflect a universal component of the disease, driven by motor and nonmotor symptoms of PD, care partner perceptions may also reflect culture-dependent values. The purpose of this study was to examine how Hispanic/Latiné care partners of individuals with PD experienced communication, social connectedness, and mental health in their relationship with their loved one with PD with the ultimate goal of establishing initial guidelines for the development of culturally responsive support groups for this population. Method: Fifteen Hispanic/Latiné care partners of people with PD participated in six focus groups. Transcripts of the video-recorded groups were analyzed qualitatively using thematic analysis. Results: Four themes were generated from this data set. Overall, care partners perceived burden as a multifaceted construct involving emotional, financial, and societal strains. Care partners implemented strategies that enhanced communicative interactions with their loved ones and served as their own coping mechanism against the progressive nature of the disease. Cultural influences on PD management and the social and mental health impact of the COVID-19 pandemic also represented key themes in this study. Conclusions: Education is an empowering resource to not only navigate difficult emotions, such as uncertainty, but also debunk societal stereotyping and facilitate open communication within the relationship. The research highlighted the significance of culturally affirming services, as many participants shared experiences of medical and psychological services lacking cultural responsiveness. Guidelines for culturally responsive support groups for Hispanic/Latiné care partners should directly target psychoeducation on PD and on disease management as well as advocacy. Special consideration should be given to the needs of Hispanic/Latiné female care partners. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of American Journal of Speech-Language Pathology is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=192247758
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      – Type: doi
        Value: 10.1044/2025_AJSLP-25-00053
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      – Code: eng
        Text: English
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        PageCount: 17
        StartPage: 621
    Subjects:
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Hispanic Americans
        Type: general
      – SubjectFull: Psychoeducation
        Type: general
      – SubjectFull: Communication
        Type: general
      – SubjectFull: Interpersonal relations
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      – SubjectFull: Caregiver attitudes
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      – SubjectFull: Support groups
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      – SubjectFull: Mental health
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      – SubjectFull: Stereotypes
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      – SubjectFull: Research funding
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      – SubjectFull: Spouses
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      – SubjectFull: Statistical sampling
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      – SubjectFull: Parkinson's disease
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      – SubjectFull: Data analysis software
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      – SubjectFull: Video recording
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      – SubjectFull: Disease progression
        Type: general
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      – TitleFull: Navigating Communication, Social Connectedness, and Mental Health Burden as Hispanic/Latiné Care Partners of Individuals With Parkinson's Disease.
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              Text: Mar2026
              Type: published
              Y: 2026
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