Supporting a 'good life' for autistic children: Autistic adults' and parents' perspectives.
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| Title: | Supporting a 'good life' for autistic children: Autistic adults' and parents' perspectives. |
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| Authors: | Simpson, Kate1 (AUTHOR) k.simpson@griffith.edu.au, Allen, Connie1 (AUTHOR), Wheeley, Elizabeth1 (AUTHOR), Pellicano, Elizabeth2,3 (AUTHOR), Heyworth, Melanie2,4 (AUTHOR), den Houting, Jacquiline2,5 (AUTHOR), Bowen, Rachael6 (AUTHOR), Adams, Dawn1,5 (AUTHOR) |
| Source: | Autism: The International Journal of Research & Practice. Apr2026, Vol. 30 Issue 4, p972-982. 11p. |
| Subject Terms: | *Play, *Qualitative research, *Autism, *Parent attitudes, *Quality of life, *Research methodology, *Asperger's syndrome, *Cultural pluralism, Patient autonomy, Research funding, Ecology, Patient psychology, Interviewing, Descriptive statistics, Psychological well-being, Thematic analysis, Sound recordings, Patient-centered care, Videoconferencing, Psychology of parents, Social support, Patients' attitudes |
| Geographic Terms: | Australia |
| Abstract: | There has been limited research into what helps to promote autistic children's quality of life. This qualitative study, co-produced with autistic people, aimed to identify, from multiple perspectives, what helps autistic children to live a 'good life'. We conducted semi-structured interviews with autistic adults (n = 28) and parents of autistic children (n = 29). Using reflexive thematic analysis, we identified four themes: Being accepted by others in a way that allows the child to be themselves; Finding 'the things that light [the child]'; Having a sense of control over their own life and Physical/sensory environments matter. All themes were common to both autistic adults and parents of autistic children, with the exception of one sub-theme, which was predominantly driven by autistic adults' responses. These findings highlight potential pathways to support autistic children's quality of life now and into the future. There hasn't been much research about what helps autistic children to live a 'good life' or to have a good quality of life. This makes it difficult to know how to help autistic children to do so. In this study, we asked autistic adults and parents of autistic children what they thought helped autistic children to live a 'good life'. They mentioned four important areas. These were (a) autistic children being accepted as their real or true self, (b) autistic children finding the things that they enjoy and that energise them, (c) autistic children having a sense of control in their life and (d) physical environments that suit autistic children's sensory needs. These are things that can be changed in the autistic child's environment to support the autistic child in living a good life. [ABSTRACT FROM AUTHOR] |
| Copyright of Autism: The International Journal of Research & Practice is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Education Research Complete |
| FullText | Text: Availability: 0 |
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| Header | DbId: ehh DbLabel: Education Research Complete An: 192433632 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Supporting a 'good life' for autistic children: Autistic adults' and parents' perspectives. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Simpson%2C+Kate%22">Simpson, Kate</searchLink><relatesTo>1</relatesTo> (AUTHOR)<i> k.simpson@griffith.edu.au</i><br /><searchLink fieldCode="AR" term="%22Allen%2C+Connie%22">Allen, Connie</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wheeley%2C+Elizabeth%22">Wheeley, Elizabeth</searchLink><relatesTo>1</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pellicano%2C+Elizabeth%22">Pellicano, Elizabeth</searchLink><relatesTo>2,3</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Heyworth%2C+Melanie%22">Heyworth, Melanie</searchLink><relatesTo>2,4</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22den+Houting%2C+Jacquiline%22">den Houting, Jacquiline</searchLink><relatesTo>2,5</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bowen%2C+Rachael%22">Bowen, Rachael</searchLink><relatesTo>6</relatesTo> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Adams%2C+Dawn%22">Adams, Dawn</searchLink><relatesTo>1,5</relatesTo> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Autism%3A+The+International+Journal+of+Research+%26+Practice%22">Autism: The International Journal of Research & Practice</searchLink>. 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This qualitative study, co-produced with autistic people, aimed to identify, from multiple perspectives, what helps autistic children to live a 'good life'. We conducted semi-structured interviews with autistic adults (n = 28) and parents of autistic children (n = 29). Using reflexive thematic analysis, we identified four themes: Being accepted by others in a way that allows the child to be themselves; Finding 'the things that light [the child]'; Having a sense of control over their own life and Physical/sensory environments matter. All themes were common to both autistic adults and parents of autistic children, with the exception of one sub-theme, which was predominantly driven by autistic adults' responses. These findings highlight potential pathways to support autistic children's quality of life now and into the future. There hasn't been much research about what helps autistic children to live a 'good life' or to have a good quality of life. This makes it difficult to know how to help autistic children to do so. In this study, we asked autistic adults and parents of autistic children what they thought helped autistic children to live a 'good life'. They mentioned four important areas. These were (a) autistic children being accepted as their real or true self, (b) autistic children finding the things that they enjoy and that energise them, (c) autistic children having a sense of control in their life and (d) physical environments that suit autistic children's sensory needs. These are things that can be changed in the autistic child's environment to support the autistic child in living a good life. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Autism: The International Journal of Research & Practice is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1177/13623613261418945 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 11 StartPage: 972 Subjects: – SubjectFull: Play Type: general – SubjectFull: Qualitative research Type: general – SubjectFull: Autism Type: general – SubjectFull: Parent attitudes Type: general – SubjectFull: Quality of life Type: general – SubjectFull: Research methodology Type: general – SubjectFull: Asperger's syndrome Type: general – SubjectFull: Cultural pluralism Type: general – SubjectFull: Patient autonomy Type: general – SubjectFull: Research funding Type: general – SubjectFull: Ecology Type: general – SubjectFull: Patient psychology Type: general – SubjectFull: Interviewing Type: general – SubjectFull: Descriptive statistics Type: general – SubjectFull: Psychological well-being Type: general – SubjectFull: Thematic analysis Type: general – SubjectFull: Sound recordings Type: general – SubjectFull: Patient-centered care Type: general – SubjectFull: Videoconferencing Type: general – SubjectFull: Psychology of parents Type: general – SubjectFull: Social support Type: general – SubjectFull: Patients' attitudes Type: general – SubjectFull: Australia Type: general Titles: – TitleFull: Supporting a 'good life' for autistic children: Autistic adults' and parents' perspectives. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Simpson, Kate – PersonEntity: Name: NameFull: Allen, Connie – PersonEntity: Name: NameFull: Wheeley, Elizabeth – PersonEntity: Name: NameFull: Pellicano, Elizabeth – PersonEntity: Name: NameFull: Heyworth, Melanie – PersonEntity: Name: NameFull: den Houting, Jacquiline – PersonEntity: Name: NameFull: Bowen, Rachael – PersonEntity: Name: NameFull: Adams, Dawn IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 04 Text: Apr2026 Type: published Y: 2026 Identifiers: – Type: issn-print Value: 13623613 Numbering: – Type: volume Value: 30 – Type: issue Value: 4 Titles: – TitleFull: Autism: The International Journal of Research & Practice Type: main |
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