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Preliminary Validation of a Care Partner-Reported Measure of Conversation Difficulties and Their Impacts in Primary Progressive Aphasia.

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Title: Preliminary Validation of a Care Partner-Reported Measure of Conversation Difficulties and Their Impacts in Primary Progressive Aphasia.
Authors: Santos, Haylie1,2, Williams, Olamide2, Bona, Matt3, Rogalski, Emily3,4, Roberts, Angela C.5,6,7 angela.roberts@uwo.ca
Source: Perspectives of the ASHA Special Interest Groups. Jun2026, Vol. 11 Issue 3, p1064-1077. 14p.
Subject Terms: *Research methodology evaluation, *Aphasia, *Communication, *Language disorders, *Research, *Research methodology, *Quality of life, *Psychology of caregivers, *Factor analysis, Multitrait multimethod techniques, Scale analysis (Psychology), Pearson correlation (Statistics), Secondary analysis, Cronbach's alpha, Research funding, Research evaluation, Descriptive statistics, Telemedicine, Burden of care, Data analysis software
Abstract: Purpose: Validated tools to assess conversation difficulties and their impacts on care providers in primary progressive aphasia (PPA), a neurodegenerative syndrome mainly affecting language, are lacking. The Perception of Conversation Index-Dementia of the Alzheimer's Type (PCI-DAT), validated initially in Alzheimer's dementia, measures perceived communication challenges, compensatory strategies, and psychosocial outcomes for care partners. Method: We examined the construct validity of the PCI-DAT in 95 communication partners of individuals with PPA who were co-enrolled in the Communication Bridge-2 randomized controlled trial. Exploratory factor analysis and parallel analysis were employed to investigate the underlying factor structure and item-fit statistics. Correlations with established measures that shared similar constructs were also assessed for convergent validity. Results: A three-factor structure emerged, with strong construct validity for PCI-DAT Subscales 1, 4, and 5. Most items (87.8%) demonstrated good fit in the PPA sample. There were moderate-to-strong correlations with established measures between PCI-DAT Subscale 1 (Conversation Difficulties), Subscale 4 (Feelings), and Subscale 5 (Challenges), with r values greater than .50 and p values less than .001. Conclusions: This study is the first to evaluate the use of the PCI-DAT in PPA. Results support the construct validity of the measure in PPA clinical care when examining conversation difficulties and their impacts on care partners. [ABSTRACT FROM AUTHOR]
Copyright of Perspectives of the ASHA Special Interest Groups is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
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  Data: Preliminary Validation of a Care Partner-Reported Measure of Conversation Difficulties and Their Impacts in Primary Progressive Aphasia.
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  Data: <searchLink fieldCode="AR" term="%22Santos%2C+Haylie%22">Santos, Haylie</searchLink><relatesTo>1,2</relatesTo><br /><searchLink fieldCode="AR" term="%22Williams%2C+Olamide%22">Williams, Olamide</searchLink><relatesTo>2</relatesTo><br /><searchLink fieldCode="AR" term="%22Bona%2C+Matt%22">Bona, Matt</searchLink><relatesTo>3</relatesTo><br /><searchLink fieldCode="AR" term="%22Rogalski%2C+Emily%22">Rogalski, Emily</searchLink><relatesTo>3,4</relatesTo><br /><searchLink fieldCode="AR" term="%22Roberts%2C+Angela+C%2E%22">Roberts, Angela C.</searchLink><relatesTo>5,6,7</relatesTo><i> angela.roberts@uwo.ca</i>
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  Data: <searchLink fieldCode="JN" term="%22Perspectives+of+the+ASHA+Special+Interest+Groups%22">Perspectives of the ASHA Special Interest Groups</searchLink>. Jun2026, Vol. 11 Issue 3, p1064-1077. 14p.
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  Data: *<searchLink fieldCode="DE" term="%22Research+methodology+evaluation%22">Research methodology evaluation</searchLink><br />*<searchLink fieldCode="DE" term="%22Aphasia%22">Aphasia</searchLink><br />*<searchLink fieldCode="DE" term="%22Communication%22">Communication</searchLink><br />*<searchLink fieldCode="DE" term="%22Language+disorders%22">Language disorders</searchLink><br />*<searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br />*<searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br />*<searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br />*<searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br />*<searchLink fieldCode="DE" term="%22Factor+analysis%22">Factor analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Multitrait+multimethod+techniques%22">Multitrait multimethod techniques</searchLink><br /><searchLink fieldCode="DE" term="%22Scale+analysis+%28Psychology%29%22">Scale analysis (Psychology)</searchLink><br /><searchLink fieldCode="DE" term="%22Pearson+correlation+%28Statistics%29%22">Pearson correlation (Statistics)</searchLink><br /><searchLink fieldCode="DE" term="%22Secondary+analysis%22">Secondary analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Cronbach's+alpha%22">Cronbach's alpha</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Research+evaluation%22">Research evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Telemedicine%22">Telemedicine</searchLink><br /><searchLink fieldCode="DE" term="%22Burden+of+care%22">Burden of care</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Validated tools to assess conversation difficulties and their impacts on care providers in primary progressive aphasia (PPA), a neurodegenerative syndrome mainly affecting language, are lacking. The Perception of Conversation Index-Dementia of the Alzheimer's Type (PCI-DAT), validated initially in Alzheimer's dementia, measures perceived communication challenges, compensatory strategies, and psychosocial outcomes for care partners. Method: We examined the construct validity of the PCI-DAT in 95 communication partners of individuals with PPA who were co-enrolled in the Communication Bridge-2 randomized controlled trial. Exploratory factor analysis and parallel analysis were employed to investigate the underlying factor structure and item-fit statistics. Correlations with established measures that shared similar constructs were also assessed for convergent validity. Results: A three-factor structure emerged, with strong construct validity for PCI-DAT Subscales 1, 4, and 5. Most items (87.8%) demonstrated good fit in the PPA sample. There were moderate-to-strong correlations with established measures between PCI-DAT Subscale 1 (Conversation Difficulties), Subscale 4 (Feelings), and Subscale 5 (Challenges), with r values greater than .50 and p values less than .001. Conclusions: This study is the first to evaluate the use of the PCI-DAT in PPA. Results support the construct validity of the measure in PPA clinical care when examining conversation difficulties and their impacts on care partners. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Perspectives of the ASHA Special Interest Groups is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1044/2026_PERSP-25-00253
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      – Code: eng
        Text: English
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        PageCount: 14
        StartPage: 1064
    Subjects:
      – SubjectFull: Research methodology evaluation
        Type: general
      – SubjectFull: Aphasia
        Type: general
      – SubjectFull: Communication
        Type: general
      – SubjectFull: Language disorders
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      – SubjectFull: Research
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      – SubjectFull: Research methodology
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      – SubjectFull: Psychology of caregivers
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      – SubjectFull: Factor analysis
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      – SubjectFull: Multitrait multimethod techniques
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      – SubjectFull: Scale analysis (Psychology)
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      – SubjectFull: Pearson correlation (Statistics)
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      – SubjectFull: Secondary analysis
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      – SubjectFull: Cronbach's alpha
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      – SubjectFull: Data analysis software
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      – TitleFull: Preliminary Validation of a Care Partner-Reported Measure of Conversation Difficulties and Their Impacts in Primary Progressive Aphasia.
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              M: 06
              Text: Jun2026
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              Y: 2026
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