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Development and Preliminary Outcomes of a Parent-Led Intervention for Malaysian School-Age Children With Cleft Lip and/or Palate.

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Title: Development and Preliminary Outcomes of a Parent-Led Intervention for Malaysian School-Age Children With Cleft Lip and/or Palate.
Authors: Yusof, Safwan1, Ibrahim, Hasherah Mohd1 hasherah@ukm.edu.my, Bressmann, Tim2
Source: Language, Speech & Hearing Services in Schools. Jul2026, Vol. 57 Issue 3, p743-758. 17p.
Subject Terms: *Communicative competence, *Statistical correlation, *Psychological resilience, *Elementary schools, *Human services programs, *Focus groups, *Data analysis, *Parent-child relationships, *Emotions, *Mainstreaming in special education, *Research, *Comparative studies, *Health education, *Interpersonal relations, *Speech therapy, Research funding, Questionnaires, Interviewing, Pilot projects, Mann Whitney U Test, Descriptive statistics, Psychological well-being, Thematic analysis, Statistics, Cleft lip, Psychology of parents, Data analysis software, Cleft palate, Social participation, Social stigma
Geographic Terms: Malaysia
Abstract: Purpose: Children with cleft lip and/or palate (CL/P) face psychosocial and communication challenges that may hinder peer relationships and emotional well-being. This study aimed to develop and evaluate the preliminary outcomes of the Module Klefiden, a parent-led intervention designed to improve psychosocial and communication functioning in Malaysian school-age children with CL/P. Method: Module activities were developed through the Nominal Group Technique (n = 12) and validated by an expert panel (n = 8). The module was then evaluated through a feasibility study with 10 parents, followed by preliminary outcomes involving 17 children. Results: The Module Klefiden comprises 14 culturally tailored, strength-based activities addressing stigma, teasing, and resilience building. The content validity of the module was high (0.86). The feasibility study showed that most parents found the Module Klefiden practicable and acceptable, as indicated by the results of the Treatment Evaluation Inventory--Short Form (M = 37.08). In the preliminary outcomes study, the module was evaluated before and after the intervention in four domains of the Cleft Lip and/or Palate Questionnaire (CLEFT-Q). The experimental group showed significant improvements in psychological function (Z = -2.668, p = .008, r = .889) and speech distress (Z = -2.201, p = .028, r = .734). Both groups showed improvements in social participation (experimental: Z = -2.392, p = .017, r = .797; control: Z = -2.375, p = .018, r = .840). Qualitative data highlighted the children's increased confidence in discussing their cleft condition. At school, children still favored physical activities over speech-related tasks. Conclusions: The Module Klefiden shows promise in improving psychosocial and communication outcomes in children with CL/P. Its structured, parent-led approach fosters emotional resilience and self-assurance, addressing a critical gap in cleft care in Malaysia. Future research should explore its long-term, large-scale application. Supplemental Material: https://doi.org/10.23641/asha.31894306 [ABSTRACT FROM AUTHOR]
Copyright of Language, Speech & Hearing Services in Schools is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
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PubType: Academic Journal
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  Data: Development and Preliminary Outcomes of a Parent-Led Intervention for Malaysian School-Age Children With Cleft Lip and/or Palate.
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  Data: <searchLink fieldCode="JN" term="%22Language%2C+Speech+%26+Hearing+Services+in+Schools%22">Language, Speech & Hearing Services in Schools</searchLink>. Jul2026, Vol. 57 Issue 3, p743-758. 17p.
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  Data: *<searchLink fieldCode="DE" term="%22Communicative+competence%22">Communicative competence</searchLink><br />*<searchLink fieldCode="DE" term="%22Statistical+correlation%22">Statistical correlation</searchLink><br />*<searchLink fieldCode="DE" term="%22Psychological+resilience%22">Psychological resilience</searchLink><br />*<searchLink fieldCode="DE" term="%22Elementary+schools%22">Elementary schools</searchLink><br />*<searchLink fieldCode="DE" term="%22Human+services+programs%22">Human services programs</searchLink><br />*<searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br />*<searchLink fieldCode="DE" term="%22Data+analysis%22">Data analysis</searchLink><br />*<searchLink fieldCode="DE" term="%22Parent-child+relationships%22">Parent-child relationships</searchLink><br />*<searchLink fieldCode="DE" term="%22Emotions%22">Emotions</searchLink><br />*<searchLink fieldCode="DE" term="%22Mainstreaming+in+special+education%22">Mainstreaming in special education</searchLink><br />*<searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br />*<searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br />*<searchLink fieldCode="DE" term="%22Health+education%22">Health education</searchLink><br />*<searchLink fieldCode="DE" term="%22Interpersonal+relations%22">Interpersonal relations</searchLink><br />*<searchLink fieldCode="DE" term="%22Speech+therapy%22">Speech therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Pilot+projects%22">Pilot projects</searchLink><br /><searchLink fieldCode="DE" term="%22Mann+Whitney+U+Test%22">Mann Whitney U Test</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+well-being%22">Psychological well-being</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Statistics%22">Statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Cleft+lip%22">Cleft lip</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Cleft+palate%22">Cleft palate</searchLink><br /><searchLink fieldCode="DE" term="%22Social+participation%22">Social participation</searchLink><br /><searchLink fieldCode="DE" term="%22Social+stigma%22">Social stigma</searchLink>
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  Label: Geographic Terms
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  Data: <searchLink fieldCode="DE" term="%22Malaysia%22">Malaysia</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Children with cleft lip and/or palate (CL/P) face psychosocial and communication challenges that may hinder peer relationships and emotional well-being. This study aimed to develop and evaluate the preliminary outcomes of the Module Klefiden, a parent-led intervention designed to improve psychosocial and communication functioning in Malaysian school-age children with CL/P. Method: Module activities were developed through the Nominal Group Technique (n = 12) and validated by an expert panel (n = 8). The module was then evaluated through a feasibility study with 10 parents, followed by preliminary outcomes involving 17 children. Results: The Module Klefiden comprises 14 culturally tailored, strength-based activities addressing stigma, teasing, and resilience building. The content validity of the module was high (0.86). The feasibility study showed that most parents found the Module Klefiden practicable and acceptable, as indicated by the results of the Treatment Evaluation Inventory--Short Form (M = 37.08). In the preliminary outcomes study, the module was evaluated before and after the intervention in four domains of the Cleft Lip and/or Palate Questionnaire (CLEFT-Q). The experimental group showed significant improvements in psychological function (Z = -2.668, p = .008, r = .889) and speech distress (Z = -2.201, p = .028, r = .734). Both groups showed improvements in social participation (experimental: Z = -2.392, p = .017, r = .797; control: Z = -2.375, p = .018, r = .840). Qualitative data highlighted the children's increased confidence in discussing their cleft condition. At school, children still favored physical activities over speech-related tasks. Conclusions: The Module Klefiden shows promise in improving psychosocial and communication outcomes in children with CL/P. Its structured, parent-led approach fosters emotional resilience and self-assurance, addressing a critical gap in cleft care in Malaysia. Future research should explore its long-term, large-scale application. Supplemental Material: https://doi.org/10.23641/asha.31894306 [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Language, Speech & Hearing Services in Schools is the property of American Speech-Language-Hearing Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=ehh&AN=195035439
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1044/2026_LSHSS-25-00133
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 17
        StartPage: 743
    Subjects:
      – SubjectFull: Communicative competence
        Type: general
      – SubjectFull: Statistical correlation
        Type: general
      – SubjectFull: Psychological resilience
        Type: general
      – SubjectFull: Elementary schools
        Type: general
      – SubjectFull: Human services programs
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Data analysis
        Type: general
      – SubjectFull: Parent-child relationships
        Type: general
      – SubjectFull: Emotions
        Type: general
      – SubjectFull: Mainstreaming in special education
        Type: general
      – SubjectFull: Research
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Health education
        Type: general
      – SubjectFull: Interpersonal relations
        Type: general
      – SubjectFull: Speech therapy
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Pilot projects
        Type: general
      – SubjectFull: Mann Whitney U Test
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Psychological well-being
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Statistics
        Type: general
      – SubjectFull: Cleft lip
        Type: general
      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Cleft palate
        Type: general
      – SubjectFull: Social participation
        Type: general
      – SubjectFull: Social stigma
        Type: general
      – SubjectFull: Malaysia
        Type: general
    Titles:
      – TitleFull: Development and Preliminary Outcomes of a Parent-Led Intervention for Malaysian School-Age Children With Cleft Lip and/or Palate.
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            NameFull: Yusof, Safwan
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            – D: 01
              M: 07
              Text: Jul2026
              Type: published
              Y: 2026
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