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Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?

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Title: Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?
Authors: Stack, Erin1, McDonald, Katherine E.2
Source: Journal of Policy & Practice in Intellectual Disabilities. Jun2014, Vol. 11 Issue 2, p83-91. 9p.
Subject Terms: *Action research, *Social problems, Psychology information storage & retrieval systems, Medical protocols, MEDLINE, People with intellectual disabilities, Health outcome assessment, Research evaluation, Self-efficacy, Systematic reviews, Evidence-based medicine, Professional practice
Abstract: Action research-research collaborations between professional researchers and community members to address community concerns-has become increasingly popular in developmental disability research. Advocates of these approaches argue that they reflect the value of including people with disabilities in matters that affect them and generate benefits for people with disabilities and for research. However, it is not clear how well action research with adults with developmental disabilities reflect core action research principles. The authors identified 21 action research projects with adults with developmental disabilities in English-language referred journals. The authors found that the majority of these projects took place in the UK or the United States, with individuals with intellectual disabilities, were published in or after 2005, and used qualitative methods to examine research aims on social issues important to adults with developmental disabilities. They reviewed common challenges, facilitators, and indicators of success described by authors and found that relatively few projects can be classified as high on the continuum of shared power. Based on these findings, the authors recommended a continued focus on the accurate understanding and application of action research models, building our knowledge of and evidence base for effective tools, strategies, resources, and personal characteristics for action research with adults with developmental disabilities, adequately funding this research, and pursuing a broader array of research methods. The projects studied herein provide evidence for the promise and possibility of action research with adults with developmental disabilities. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Policy & Practice in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Education Research Complete
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  Data: Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?
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  Data: *<searchLink fieldCode="DE" term="%22Action+research%22">Action research</searchLink><br />*<searchLink fieldCode="DE" term="%22Social+problems%22">Social problems</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+information+storage+%26+retrieval+systems%22">Psychology information storage & retrieval systems</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+protocols%22">Medical protocols</searchLink><br /><searchLink fieldCode="DE" term="%22MEDLINE%22">MEDLINE</searchLink><br /><searchLink fieldCode="DE" term="%22People+with+intellectual+disabilities%22">People with intellectual disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Health+outcome+assessment%22">Health outcome assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Research+evaluation%22">Research evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Self-efficacy%22">Self-efficacy</searchLink><br /><searchLink fieldCode="DE" term="%22Systematic+reviews%22">Systematic reviews</searchLink><br /><searchLink fieldCode="DE" term="%22Evidence-based+medicine%22">Evidence-based medicine</searchLink><br /><searchLink fieldCode="DE" term="%22Professional+practice%22">Professional practice</searchLink>
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  Data: Action research-research collaborations between professional researchers and community members to address community concerns-has become increasingly popular in developmental disability research. Advocates of these approaches argue that they reflect the value of including people with disabilities in matters that affect them and generate benefits for people with disabilities and for research. However, it is not clear how well action research with adults with developmental disabilities reflect core action research principles. The authors identified 21 action research projects with adults with developmental disabilities in English-language referred journals. The authors found that the majority of these projects took place in the UK or the United States, with individuals with intellectual disabilities, were published in or after 2005, and used qualitative methods to examine research aims on social issues important to adults with developmental disabilities. They reviewed common challenges, facilitators, and indicators of success described by authors and found that relatively few projects can be classified as high on the continuum of shared power. Based on these findings, the authors recommended a continued focus on the accurate understanding and application of action research models, building our knowledge of and evidence base for effective tools, strategies, resources, and personal characteristics for action research with adults with developmental disabilities, adequately funding this research, and pursuing a broader array of research methods. The projects studied herein provide evidence for the promise and possibility of action research with adults with developmental disabilities. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Policy & Practice in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1111/jppi.12074
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        Text: English
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      – SubjectFull: Social problems
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      – SubjectFull: Psychology information storage & retrieval systems
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      – SubjectFull: Medical protocols
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      – SubjectFull: MEDLINE
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      – SubjectFull: People with intellectual disabilities
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      – SubjectFull: Health outcome assessment
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      – SubjectFull: Research evaluation
        Type: general
      – SubjectFull: Self-efficacy
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      – SubjectFull: Systematic reviews
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      – SubjectFull: Evidence-based medicine
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      – SubjectFull: Professional practice
        Type: general
    Titles:
      – TitleFull: Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?
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            NameFull: Stack, Erin
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              Text: Jun2014
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