Counseling Students Who Have Usher Syndrome. PEPNet Tipsheet
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| Title: | Counseling Students Who Have Usher Syndrome. PEPNet Tipsheet |
|---|---|
| Language: | English |
| Authors: | Lago-Avery, Patricia, PEPNet 2 |
| Source: | PEPNet 2. 2010. |
| Availability: | PEPNet 2. 18111 Nordhoff Street, Northridge, CA 91330. e-mail: help@pepnet.org; Web site: http://www.pepnet.org |
| Peer Reviewed: | N |
| Physical Description: | |
| Page Count: | 4 |
| Publication Date: | 2010 |
| Document Type: | Reports - Descriptive |
| Education Level: | Elementary Secondary Education Higher Education Postsecondary Education |
| Descriptors: | Children, Late Adolescents, Genetic Disorders, Deafness, College Students, Disabilities, Visual Impairments, Counseling Services, Career Development, High School Students |
| Abstract: | Usher Syndrome is an autosomal recessive genetic disorder characterized by congenital hearing loss and gradually developing retinitis pigmentosa leading to the loss of vision. Approximately 27,000 people in the United States have some form of Usher Syndrome. Most of these individuals have either Type I (11,000) or Type II (16,000). Type I Usher Syndrome is characterized by profound congenital deafness, vision problems starting in early childhood, and severe balance problems. An individual born with a moderate to severe hearing loss and normal balance characterizes Type II Usher Syndrome. Night blindness for Type II begins at childhood, but many individuals might not be aware of it until late adolescence/early adulthood. It is critical for support service personnel and counselors in college/university environments who work with students with Usher Syndrome--regardless of type--to have a good understanding of special issues that arise for these students and to be aware of strategies that will benefit this population. The purpose of this tipsheet is to identify particular issues of concern for those who counsel college-age students who have Usher Syndrome and list some strategies, tips, and resources for both professionals and students. |
| Abstractor: | ERIC |
| Entry Date: | 2013 |
| Access URL: | https://www.pepnet.org/sites/default/files/67PEPNet%20Tipsheet%20-%20%20counseling%20students%20who%20have%20Usher%20Syndrome.pdf |
| Accession Number: | ED543706 |
| Database: | ERIC |
| FullText | Text: Availability: 0 |
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| Header | DbId: eric DbLabel: ERIC An: ED543706 AccessLevel: 3 PubType: Report PubTypeId: report PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Counseling Students Who Have Usher Syndrome. PEPNet Tipsheet – Name: Language Label: Language Group: Lang Data: English – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Lago-Avery%2C+Patricia%22">Lago-Avery, Patricia</searchLink><br /><searchLink fieldCode="AR" term="%22PEPNet+2%22">PEPNet 2</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="SO" term="%22PEPNet+2%22"><i>PEPNet 2</i></searchLink>. 2010. – Name: Avail Label: Availability Group: Avail Data: PEPNet 2. 18111 Nordhoff Street, Northridge, CA 91330. e-mail: help@pepnet.org; Web site: http://www.pepnet.org – Name: PeerReviewed Label: Peer Reviewed Group: SrcInfo Data: N – Name: PhysDesc Label: Physical Description Group: PhysDesc Data: PDF – Name: Pages Label: Page Count Group: Src Data: 4 – Name: DatePubCY Label: Publication Date Group: Date Data: 2010 – Name: TypeDocument Label: Document Type Group: TypDoc Data: Reports - Descriptive – Name: Audience Label: Education Level Group: Audnce Data: <searchLink fieldCode="EL" term="%22Elementary+Secondary+Education%22">Elementary Secondary Education</searchLink><br /><searchLink fieldCode="EL" term="%22Higher+Education%22">Higher Education</searchLink><br /><searchLink fieldCode="EL" term="%22Postsecondary+Education%22">Postsecondary Education</searchLink> – Name: Subject Label: Descriptors Group: Su Data: <searchLink fieldCode="DE" term="%22Children%22">Children</searchLink><br /><searchLink fieldCode="DE" term="%22Late+Adolescents%22">Late Adolescents</searchLink><br /><searchLink fieldCode="DE" term="%22Genetic+Disorders%22">Genetic Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Deafness%22">Deafness</searchLink><br /><searchLink fieldCode="DE" term="%22College+Students%22">College Students</searchLink><br /><searchLink fieldCode="DE" term="%22Disabilities%22">Disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Visual+Impairments%22">Visual Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Counseling+Services%22">Counseling Services</searchLink><br /><searchLink fieldCode="DE" term="%22Career+Development%22">Career Development</searchLink><br /><searchLink fieldCode="DE" term="%22High+School+Students%22">High School Students</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Usher Syndrome is an autosomal recessive genetic disorder characterized by congenital hearing loss and gradually developing retinitis pigmentosa leading to the loss of vision. Approximately 27,000 people in the United States have some form of Usher Syndrome. Most of these individuals have either Type I (11,000) or Type II (16,000). Type I Usher Syndrome is characterized by profound congenital deafness, vision problems starting in early childhood, and severe balance problems. An individual born with a moderate to severe hearing loss and normal balance characterizes Type II Usher Syndrome. Night blindness for Type II begins at childhood, but many individuals might not be aware of it until late adolescence/early adulthood. It is critical for support service personnel and counselors in college/university environments who work with students with Usher Syndrome--regardless of type--to have a good understanding of special issues that arise for these students and to be aware of strategies that will benefit this population. The purpose of this tipsheet is to identify particular issues of concern for those who counsel college-age students who have Usher Syndrome and list some strategies, tips, and resources for both professionals and students. – Name: AbstractInfo Label: Abstractor Group: Ab Data: ERIC – Name: DateEntry Label: Entry Date Group: Date Data: 2013 – Name: URL Label: Access URL Group: URL Data: <link linkTarget="URL" linkTerm="https://www.pepnet.org/sites/default/files/67PEPNet%20Tipsheet%20-%20%20counseling%20students%20who%20have%20Usher%20Syndrome.pdf" linkWindow="_blank">http://www.pepnet.org/sites/default/files/67PEPNet%20Tipsheet%20-%20%20counseling%20students%20who%20have%20Usher%20Syndrome.pdf</link> – Name: AN Label: Accession Number Group: ID Data: ED543706 |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=eric&AN=ED543706 |
| RecordInfo | BibRecord: BibEntity: Languages: – Text: English PhysicalDescription: Pagination: PageCount: 4 Subjects: – SubjectFull: Children Type: general – SubjectFull: Late Adolescents Type: general – SubjectFull: Genetic Disorders Type: general – SubjectFull: Deafness Type: general – SubjectFull: College Students Type: general – SubjectFull: Disabilities Type: general – SubjectFull: Visual Impairments Type: general – SubjectFull: Counseling Services Type: general – SubjectFull: Career Development Type: general – SubjectFull: High School Students Type: general Titles: – TitleFull: Counseling Students Who Have Usher Syndrome. PEPNet Tipsheet Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: PEPNet 2 – PersonEntity: Name: NameFull: Lago-Avery, Patricia IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Type: published Y: 2010 Titles: – TitleFull: PEPNet 2 Type: main |
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