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Having a Son or Daughter with an Intellectual Disability Transition to Adulthood: A Parental Perspective

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Title: Having a Son or Daughter with an Intellectual Disability Transition to Adulthood: A Parental Perspective
Language: English
Authors: Codd, Jon (ORCID 0000-0002-3941-9701), Hewitt, Olivia (ORCID 0000-0002-6393-2388)
Source: British Journal of Learning Disabilities. Mar 2021 49(1):39-51.
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 13
Publication Date: 2021
Document Type: Journal Articles
Reports - Research
Descriptors: Intellectual Disability, Autism, Pervasive Developmental Disorders, Parent Attitudes, Parent Child Relationship, Role Perception, Independent Living, Adjustment (to Environment), Aging (Individuals), Late Adolescents, Young Adults, Social Support Groups, Social Networks, Sons, Daughters, Foreign Countries
Geographic Terms: United Kingdom
DOI: 10.1111/bld.12327
ISSN: 1354-4187
Abstract: Background: Transition to adulthood is an important time for young people and may be a particularly challenging time for people with intellectual disabilities. However, there has been little research in the UK regarding the experiences of parents who have son or daughter with an intellectual disability transitioning to adulthood. Method: The study used interpretive phenomenological analysis to explore the lived experiences of ten parents who had a son or daughter (aged 18-25 years) with an intellectual disability. Half of the sample also had a diagnosis of autism. Results: Three superordinate themes were generated from the data: (a) Transition: The Good, the Bad and Unknown; (b) Striving for Independence; and (c) Supporting the Supporters. Parents experienced many difficulties and uncertainty related to their role, their son/daughter's independence, navigating services for their son/daughter and accessing support for themselves. Conclusions: Increased collaboration and consistency from statutory services is required in addition to providing emotional support to parents and facilitating parent support networks.
Abstractor: As Provided
Entry Date: 2021
Accession Number: EJ1284231
Database: ERIC
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  Data: Having a Son or Daughter with an Intellectual Disability Transition to Adulthood: A Parental Perspective
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  Data: <searchLink fieldCode="AR" term="%22Codd%2C+Jon%22">Codd, Jon</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-3941-9701">0000-0002-3941-9701</externalLink>)<br /><searchLink fieldCode="AR" term="%22Hewitt%2C+Olivia%22">Hewitt, Olivia</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-6393-2388">0000-0002-6393-2388</externalLink>)
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  Data: <searchLink fieldCode="SO" term="%22British+Journal+of+Learning+Disabilities%22"><i>British Journal of Learning Disabilities</i></searchLink>. Mar 2021 49(1):39-51.
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  Data: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: Journal Articles<br />Reports - Research
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  Data: <searchLink fieldCode="DE" term="%22Intellectual+Disability%22">Intellectual Disability</searchLink><br /><searchLink fieldCode="DE" term="%22Autism%22">Autism</searchLink><br /><searchLink fieldCode="DE" term="%22Pervasive+Developmental+Disorders%22">Pervasive Developmental Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+Attitudes%22">Parent Attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+Child+Relationship%22">Parent Child Relationship</searchLink><br /><searchLink fieldCode="DE" term="%22Role+Perception%22">Role Perception</searchLink><br /><searchLink fieldCode="DE" term="%22Independent+Living%22">Independent Living</searchLink><br /><searchLink fieldCode="DE" term="%22Adjustment+%28to+Environment%29%22">Adjustment (to Environment)</searchLink><br /><searchLink fieldCode="DE" term="%22Aging+%28Individuals%29%22">Aging (Individuals)</searchLink><br /><searchLink fieldCode="DE" term="%22Late+Adolescents%22">Late Adolescents</searchLink><br /><searchLink fieldCode="DE" term="%22Young+Adults%22">Young Adults</searchLink><br /><searchLink fieldCode="DE" term="%22Social+Support+Groups%22">Social Support Groups</searchLink><br /><searchLink fieldCode="DE" term="%22Social+Networks%22">Social Networks</searchLink><br /><searchLink fieldCode="DE" term="%22Sons%22">Sons</searchLink><br /><searchLink fieldCode="DE" term="%22Daughters%22">Daughters</searchLink><br /><searchLink fieldCode="DE" term="%22Foreign+Countries%22">Foreign Countries</searchLink>
– Name: Subject
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22United+Kingdom%22">United Kingdom</searchLink>
– Name: DOI
  Label: DOI
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  Data: 10.1111/bld.12327
– Name: ISSN
  Label: ISSN
  Group: ISSN
  Data: 1354-4187
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Transition to adulthood is an important time for young people and may be a particularly challenging time for people with intellectual disabilities. However, there has been little research in the UK regarding the experiences of parents who have son or daughter with an intellectual disability transitioning to adulthood. Method: The study used interpretive phenomenological analysis to explore the lived experiences of ten parents who had a son or daughter (aged 18-25 years) with an intellectual disability. Half of the sample also had a diagnosis of autism. Results: Three superordinate themes were generated from the data: (a) Transition: The Good, the Bad and Unknown; (b) Striving for Independence; and (c) Supporting the Supporters. Parents experienced many difficulties and uncertainty related to their role, their son/daughter's independence, navigating services for their son/daughter and accessing support for themselves. Conclusions: Increased collaboration and consistency from statutory services is required in addition to providing emotional support to parents and facilitating parent support networks.
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        Value: 10.1111/bld.12327
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      – Text: English
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        PageCount: 13
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      – SubjectFull: Intellectual Disability
        Type: general
      – SubjectFull: Autism
        Type: general
      – SubjectFull: Pervasive Developmental Disorders
        Type: general
      – SubjectFull: Parent Attitudes
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      – SubjectFull: Role Perception
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      – SubjectFull: Independent Living
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      – SubjectFull: Aging (Individuals)
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      – SubjectFull: Late Adolescents
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      – SubjectFull: Young Adults
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      – SubjectFull: Social Support Groups
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      – SubjectFull: Sons
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      – SubjectFull: Daughters
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      – SubjectFull: Foreign Countries
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      – SubjectFull: United Kingdom
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      – TitleFull: Having a Son or Daughter with an Intellectual Disability Transition to Adulthood: A Parental Perspective
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            NameFull: Hewitt, Olivia
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