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How to Improve Healthcare for Autistic People: A Qualitative Study of the Views of Autistic People and Clinicians

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Title: How to Improve Healthcare for Autistic People: A Qualitative Study of the Views of Autistic People and Clinicians
Language: English
Authors: Mason, David (ORCID 0000-0002-1382-4688), Ingham, Barry (ORCID 0000-0002-7268-2288), Birtles, Heather, Michael, Cos, Scarlett, Clare, James, Ian A., Brown, Toni, Woodbury-Smith, Marc, Wilson, Colin, Finch, Tracy, Parr, Jeremy R.
Source: Autism: The International Journal of Research and Practice. Apr 2021 25(3):774-785.
Availability: SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Peer Reviewed: Y
Page Count: 12
Publication Date: 2021
Document Type: Journal Articles
Reports - Research
Descriptors: Autism, Pervasive Developmental Disorders, Access to Health Care, Allied Health Personnel, Interpersonal Relationship, Environmental Influences, Clinical Diagnosis, Coping, Barriers, Foreign Countries, Cognitive Ability, Behavior Problems, Individual Characteristics, Accessibility (for Disabled)
Geographic Terms: United Kingdom (England)
DOI: 10.1177/1362361321993709
ISSN: 1362-3613
Abstract: Autism spectrum condition is associated with co-occurring physical health conditions and premature mortality. Autistic people experience multiple barriers to accessing healthcare. This study investigated autistic people's experiences of healthcare and professionals' experiences of providing healthcare to autistic people. Focus groups with 11 autistic people and one supporter, and 15 one-to-one interviews with healthcare professionals were completed. Nine themes emerged from the autistic participants' data and eight themes emerged from the health professionals' data. Three themes were identified by both groups: healthcare contacts (for improving the patient--provider relationship), making reasonable adjustments to healthcare (e.g. providing alternative places to wait for an appointment) and autism diagnosis. Autistic participants discussed the role of cognitive factors in the success of healthcare visits (such as rehearsing an anticipated conversation with the clinician the night before an appointment) and clinicians described system-level constraints that may affect healthcare delivery (such as time limits on appointments). This study identified inexpensive changes that health professionals and managers can make to improve healthcare access for autistic people.
Abstractor: As Provided
Entry Date: 2021
Accession Number: EJ1293657
Database: ERIC
FullText Links:
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  Data: How to Improve Healthcare for Autistic People: A Qualitative Study of the Views of Autistic People and Clinicians
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  Data: <searchLink fieldCode="AR" term="%22Mason%2C+David%22">Mason, David</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-1382-4688">0000-0002-1382-4688</externalLink>)<br /><searchLink fieldCode="AR" term="%22Ingham%2C+Barry%22">Ingham, Barry</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-7268-2288">0000-0002-7268-2288</externalLink>)<br /><searchLink fieldCode="AR" term="%22Birtles%2C+Heather%22">Birtles, Heather</searchLink><br /><searchLink fieldCode="AR" term="%22Michael%2C+Cos%22">Michael, Cos</searchLink><br /><searchLink fieldCode="AR" term="%22Scarlett%2C+Clare%22">Scarlett, Clare</searchLink><br /><searchLink fieldCode="AR" term="%22James%2C+Ian+A%2E%22">James, Ian A.</searchLink><br /><searchLink fieldCode="AR" term="%22Brown%2C+Toni%22">Brown, Toni</searchLink><br /><searchLink fieldCode="AR" term="%22Woodbury-Smith%2C+Marc%22">Woodbury-Smith, Marc</searchLink><br /><searchLink fieldCode="AR" term="%22Wilson%2C+Colin%22">Wilson, Colin</searchLink><br /><searchLink fieldCode="AR" term="%22Finch%2C+Tracy%22">Finch, Tracy</searchLink><br /><searchLink fieldCode="AR" term="%22Parr%2C+Jeremy+R%2E%22">Parr, Jeremy R.</searchLink>
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  Data: SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
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  Data: <searchLink fieldCode="DE" term="%22Autism%22">Autism</searchLink><br /><searchLink fieldCode="DE" term="%22Pervasive+Developmental+Disorders%22">Pervasive Developmental Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Access+to+Health+Care%22">Access to Health Care</searchLink><br /><searchLink fieldCode="DE" term="%22Allied+Health+Personnel%22">Allied Health Personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Interpersonal+Relationship%22">Interpersonal Relationship</searchLink><br /><searchLink fieldCode="DE" term="%22Environmental+Influences%22">Environmental Influences</searchLink><br /><searchLink fieldCode="DE" term="%22Clinical+Diagnosis%22">Clinical Diagnosis</searchLink><br /><searchLink fieldCode="DE" term="%22Coping%22">Coping</searchLink><br /><searchLink fieldCode="DE" term="%22Barriers%22">Barriers</searchLink><br /><searchLink fieldCode="DE" term="%22Foreign+Countries%22">Foreign Countries</searchLink><br /><searchLink fieldCode="DE" term="%22Cognitive+Ability%22">Cognitive Ability</searchLink><br /><searchLink fieldCode="DE" term="%22Behavior+Problems%22">Behavior Problems</searchLink><br /><searchLink fieldCode="DE" term="%22Individual+Characteristics%22">Individual Characteristics</searchLink><br /><searchLink fieldCode="DE" term="%22Accessibility+%28for+Disabled%29%22">Accessibility (for Disabled)</searchLink>
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  Data: Autism spectrum condition is associated with co-occurring physical health conditions and premature mortality. Autistic people experience multiple barriers to accessing healthcare. This study investigated autistic people's experiences of healthcare and professionals' experiences of providing healthcare to autistic people. Focus groups with 11 autistic people and one supporter, and 15 one-to-one interviews with healthcare professionals were completed. Nine themes emerged from the autistic participants' data and eight themes emerged from the health professionals' data. Three themes were identified by both groups: healthcare contacts (for improving the patient--provider relationship), making reasonable adjustments to healthcare (e.g. providing alternative places to wait for an appointment) and autism diagnosis. Autistic participants discussed the role of cognitive factors in the success of healthcare visits (such as rehearsing an anticipated conversation with the clinician the night before an appointment) and clinicians described system-level constraints that may affect healthcare delivery (such as time limits on appointments). This study identified inexpensive changes that health professionals and managers can make to improve healthcare access for autistic people.
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