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Exploring Parental Perspectives of Childhood Speech and Language Disorders across 10 Countries: A Pilot Qualitative Study

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Title: Exploring Parental Perspectives of Childhood Speech and Language Disorders across 10 Countries: A Pilot Qualitative Study
Language: English
Authors: Jensen de López, Kristine M. (ORCID 0000-0001-5799-8615), Lyons, Rena (ORCID 0000-0001-7294-9707), Novogrodsky, Rama (ORCID 0000-0002-9834-2388), Baena, Sofia (ORCID 0000-0003-4736-9318), Feilberg, Julie, Harding, Sam (ORCID 0000-0002-5870-2094), Kelic, Maja (ORCID 0000-0002-7253-1295), Klatte, Inge S., Mantel, Tina C., Tomazin, Marina O., Ulfsdottir, Thora S., Zajdó, Krisztina (ORCID 0000-0002-6047-2275), Rodriguez-Ortiz, Isabel R. (ORCID 0000-0002-2623-4310)
Source: Journal of Speech, Language, and Hearing Research. May 2021 64(5):1739-1747.
Availability: American Speech-Language-Hearing Association. 2200 Research Blvd #250, Rockville, MD 20850. Tel: 301-296-5700; Fax: 301-296-8580; e-mail: slhr@asha.org; Web site: http://jslhr.pubs.asha.org
Peer Reviewed: Y
Page Count: 9
Publication Date: 2021
Document Type: Journal Articles
Reports - Research
Descriptors: Parent Attitudes, Speech Impairments, Language Impairments, Foreign Countries, Cultural Differences, Expertise, Knowledge Level, Parent Participation, Individual Characteristics, Communication Skills, Language Acquisition, Language Skills, Speech Skills, Disabilities
Geographic Terms: Croatia, Denmark, United Kingdom (England), Hungary, Iceland, Ireland, Israel, Netherlands, Norway, Spain
DOI: 10.1044/2020_JSLHR-20-00415
ISSN: 1092-4388
Abstract: Purpose: Although researchers have explored parental perspectives of childhood speech and language disorders, most studies have been conducted in English-speaking countries. Little is known about parental experiences across countries, where procedures of language screening and services for language disorders differ. The authors participated in the COST Action network IS1406, "Enhancing Children's Oral Language Skills Across Europe and Beyond," which provided an opportunity to conduct cross-country qualitative interviews with parents. The aim of this pilot study was to explore ways in which parents construed and described speech and language disorders across countries. Method: Semistructured qualitative interviews were conducted with parents from 10 families in 10 different countries. The data were analyzed using thematic analysis. Findings: The overall theme was "acknowledging parental expertise." The parents described, in detail, ways in which their children's speech and language (dis)abilities had an impact on the children's everyday life. Three subthemes were identified: impairment, disability, and changes over time. Conclusions: The findings suggest that, across a range of countries, parents demonstrated contextualized understandings of their children's speech and language (dis)abilities, along with the everyday functional implications of the disorders. Hence, despite not holding professional knowledge about language disorders, the voices, views, understandings, and personal experiences of parents in relation to their child's disorder should be listened to when planning therapy services.
Abstractor: As Provided
Entry Date: 2021
Accession Number: EJ1303687
Database: ERIC
FullText Links:
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  Data: Exploring Parental Perspectives of Childhood Speech and Language Disorders across 10 Countries: A Pilot Qualitative Study
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  Data: English
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  Data: <searchLink fieldCode="AR" term="%22Jensen+de+López%2C+Kristine+M%2E%22">Jensen de López, Kristine M.</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-5799-8615">0000-0001-5799-8615</externalLink>)<br /><searchLink fieldCode="AR" term="%22Lyons%2C+Rena%22">Lyons, Rena</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-7294-9707">0000-0001-7294-9707</externalLink>)<br /><searchLink fieldCode="AR" term="%22Novogrodsky%2C+Rama%22">Novogrodsky, Rama</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-9834-2388">0000-0002-9834-2388</externalLink>)<br /><searchLink fieldCode="AR" term="%22Baena%2C+Sofia%22">Baena, Sofia</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0003-4736-9318">0000-0003-4736-9318</externalLink>)<br /><searchLink fieldCode="AR" term="%22Feilberg%2C+Julie%22">Feilberg, Julie</searchLink><br /><searchLink fieldCode="AR" term="%22Harding%2C+Sam%22">Harding, Sam</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-5870-2094">0000-0002-5870-2094</externalLink>)<br /><searchLink fieldCode="AR" term="%22Kelic%2C+Maja%22">Kelic, Maja</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-7253-1295">0000-0002-7253-1295</externalLink>)<br /><searchLink fieldCode="AR" term="%22Klatte%2C+Inge+S%2E%22">Klatte, Inge S.</searchLink><br /><searchLink fieldCode="AR" term="%22Mantel%2C+Tina+C%2E%22">Mantel, Tina C.</searchLink><br /><searchLink fieldCode="AR" term="%22Tomazin%2C+Marina+O%2E%22">Tomazin, Marina O.</searchLink><br /><searchLink fieldCode="AR" term="%22Ulfsdottir%2C+Thora+S%2E%22">Ulfsdottir, Thora S.</searchLink><br /><searchLink fieldCode="AR" term="%22Zajdó%2C+Krisztina%22">Zajdó, Krisztina</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-6047-2275">0000-0002-6047-2275</externalLink>)<br /><searchLink fieldCode="AR" term="%22Rodriguez-Ortiz%2C+Isabel+R%2E%22">Rodriguez-Ortiz, Isabel R.</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-2623-4310">0000-0002-2623-4310</externalLink>)
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  Data: <searchLink fieldCode="SO" term="%22Journal+of+Speech%2C+Language%2C+and+Hearing+Research%22"><i>Journal of Speech, Language, and Hearing Research</i></searchLink>. May 2021 64(5):1739-1747.
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  Data: American Speech-Language-Hearing Association. 2200 Research Blvd #250, Rockville, MD 20850. Tel: 301-296-5700; Fax: 301-296-8580; e-mail: slhr@asha.org; Web site: http://jslhr.pubs.asha.org
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  Data: 9
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  Label: Descriptors
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Parent+Attitudes%22">Parent Attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Speech+Impairments%22">Speech Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Language+Impairments%22">Language Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Foreign+Countries%22">Foreign Countries</searchLink><br /><searchLink fieldCode="DE" term="%22Cultural+Differences%22">Cultural Differences</searchLink><br /><searchLink fieldCode="DE" term="%22Expertise%22">Expertise</searchLink><br /><searchLink fieldCode="DE" term="%22Knowledge+Level%22">Knowledge Level</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+Participation%22">Parent Participation</searchLink><br /><searchLink fieldCode="DE" term="%22Individual+Characteristics%22">Individual Characteristics</searchLink><br /><searchLink fieldCode="DE" term="%22Communication+Skills%22">Communication Skills</searchLink><br /><searchLink fieldCode="DE" term="%22Language+Acquisition%22">Language Acquisition</searchLink><br /><searchLink fieldCode="DE" term="%22Language+Skills%22">Language Skills</searchLink><br /><searchLink fieldCode="DE" term="%22Speech+Skills%22">Speech Skills</searchLink><br /><searchLink fieldCode="DE" term="%22Disabilities%22">Disabilities</searchLink>
– Name: Subject
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Croatia%22">Croatia</searchLink><br /><searchLink fieldCode="DE" term="%22Denmark%22">Denmark</searchLink><br /><searchLink fieldCode="DE" term="%22United+Kingdom+%28England%29%22">United Kingdom (England)</searchLink><br /><searchLink fieldCode="DE" term="%22Hungary%22">Hungary</searchLink><br /><searchLink fieldCode="DE" term="%22Iceland%22">Iceland</searchLink><br /><searchLink fieldCode="DE" term="%22Ireland%22">Ireland</searchLink><br /><searchLink fieldCode="DE" term="%22Israel%22">Israel</searchLink><br /><searchLink fieldCode="DE" term="%22Netherlands%22">Netherlands</searchLink><br /><searchLink fieldCode="DE" term="%22Norway%22">Norway</searchLink><br /><searchLink fieldCode="DE" term="%22Spain%22">Spain</searchLink>
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  Label: DOI
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  Data: 10.1044/2020_JSLHR-20-00415
– Name: ISSN
  Label: ISSN
  Group: ISSN
  Data: 1092-4388
– Name: Abstract
  Label: Abstract
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  Data: Purpose: Although researchers have explored parental perspectives of childhood speech and language disorders, most studies have been conducted in English-speaking countries. Little is known about parental experiences across countries, where procedures of language screening and services for language disorders differ. The authors participated in the COST Action network IS1406, "Enhancing Children's Oral Language Skills Across Europe and Beyond," which provided an opportunity to conduct cross-country qualitative interviews with parents. The aim of this pilot study was to explore ways in which parents construed and described speech and language disorders across countries. Method: Semistructured qualitative interviews were conducted with parents from 10 families in 10 different countries. The data were analyzed using thematic analysis. Findings: The overall theme was "acknowledging parental expertise." The parents described, in detail, ways in which their children's speech and language (dis)abilities had an impact on the children's everyday life. Three subthemes were identified: impairment, disability, and changes over time. Conclusions: The findings suggest that, across a range of countries, parents demonstrated contextualized understandings of their children's speech and language (dis)abilities, along with the everyday functional implications of the disorders. Hence, despite not holding professional knowledge about language disorders, the voices, views, understandings, and personal experiences of parents in relation to their child's disorder should be listened to when planning therapy services.
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