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Biases, Barriers, and Possible Solutions: Steps towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities

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Bibliographic Details
Title: Biases, Barriers, and Possible Solutions: Steps towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities
Language: English
Authors: Maye, Melissa (ORCID 0000-0002-0408-7823), Boyd, Brian A., Martínez-Pedraza, Frances, Halladay, Alycia, Thurm, Audrey, Mandell, David S.
Source: Journal of Autism and Developmental Disorders. Sep 2022 52(9):4206-4211.
Availability: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Peer Reviewed: Y
Page Count: 6
Publication Date: 2022
Document Type: Journal Articles
Reports - Research
Descriptors: Researchers, Autism, Pervasive Developmental Disorders, Diversity, Disproportionate Representation, Minority Groups, Economically Disadvantaged, Cultural Pluralism, School Community Relationship, Access to Health Care
DOI: 10.1007/s10803-021-05250-y
ISSN: 0162-3257
1573-3432
Abstract: Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making.
Abstractor: As Provided
Entry Date: 2022
Accession Number: EJ1343855
Database: ERIC
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Abstract:Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making.
ISSN:0162-3257
1573-3432
DOI:10.1007/s10803-021-05250-y