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Stakeholder-Engaged Research: What Our Friendship in Aphasia Team Learned about Processes and Pitfalls

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Title: Stakeholder-Engaged Research: What Our Friendship in Aphasia Team Learned about Processes and Pitfalls
Language: English
Authors: Strong, Katie A., Douglas, Natalie F., Johnson, Rebecca, Silverman, Maura, Azios, Jamie H., Archer, Brent
Source: Topics in Language Disorders. Jan-Mar 2023 43(1):43-56.
Availability: Lippincott Williams & Wilkins. Available from: Wolters Kluwer. 351 West Camden Street, Baltimore, MD 21201. Tel: 800-638-3030; e-mail: MR-WKCustomerSupport@wolterskluwer.com; Web site: https://journals.lww.com/pages/default.aspx
Peer Reviewed: Y
Page Count: 14
Publication Date: 2023
Document Type: Journal Articles
Reports - Evaluative
Descriptors: Aphasia, Friendship, Intervention, Stakeholders, Caregivers, Researchers, Allied Health Personnel, Research, Reflection, Experience, Teamwork, Letters (Correspondence), Models, Dialogs (Language), Research Methodology, Barriers
DOI: 10.1097/TLD.0000000000000302
ISSN: 0271-8294
1550-3259
Abstract: There is a need for intervention to support friendship for people living with aphasia. The purpose of this article is to describe a stakeholder engagement process that involved researchers, clinicians, people living with aphasia, and care partners to inform such intervention. Through reflection and firsthand accounts of non-university-based researchers, people not typically represented in the research process, we share details of two main lessons learned throughout the stakeholder engagement journey: (1) accessible engagement and (2) team correspondence. Finally, we describe experiences with use of the Social Convoy Model to support discussion and engagement about friendship and aphasia. We argue that this tool be a consideration in future intervention research in this area to support people with aphasia communicating their friendship priorities and goals. Although the richness of multistakeholder research teams has been documented, we hope that this article provides detail that is not commonly shared thus illuminating the process. We also hope to provide a transparent account of the cost and time required to ensure equity across stakeholder groups.
Abstractor: As Provided
Entry Date: 2023
Accession Number: EJ1383039
Database: ERIC
FullText Text:
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  Data: Stakeholder-Engaged Research: What Our Friendship in Aphasia Team Learned about Processes and Pitfalls
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  Data: <searchLink fieldCode="AR" term="%22Strong%2C+Katie+A%2E%22">Strong, Katie A.</searchLink><br /><searchLink fieldCode="AR" term="%22Douglas%2C+Natalie+F%2E%22">Douglas, Natalie F.</searchLink><br /><searchLink fieldCode="AR" term="%22Johnson%2C+Rebecca%22">Johnson, Rebecca</searchLink><br /><searchLink fieldCode="AR" term="%22Silverman%2C+Maura%22">Silverman, Maura</searchLink><br /><searchLink fieldCode="AR" term="%22Azios%2C+Jamie+H%2E%22">Azios, Jamie H.</searchLink><br /><searchLink fieldCode="AR" term="%22Archer%2C+Brent%22">Archer, Brent</searchLink>
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  Data: <searchLink fieldCode="SO" term="%22Topics+in+Language+Disorders%22"><i>Topics in Language Disorders</i></searchLink>. Jan-Mar 2023 43(1):43-56.
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  Data: Lippincott Williams & Wilkins. Available from: Wolters Kluwer. 351 West Camden Street, Baltimore, MD 21201. Tel: 800-638-3030; e-mail: MR-WKCustomerSupport@wolterskluwer.com; Web site: https://journals.lww.com/pages/default.aspx
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  Data: 14
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  Data: Journal Articles<br />Reports - Evaluative
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  Data: <searchLink fieldCode="DE" term="%22Aphasia%22">Aphasia</searchLink><br /><searchLink fieldCode="DE" term="%22Friendship%22">Friendship</searchLink><br /><searchLink fieldCode="DE" term="%22Intervention%22">Intervention</searchLink><br /><searchLink fieldCode="DE" term="%22Stakeholders%22">Stakeholders</searchLink><br /><searchLink fieldCode="DE" term="%22Caregivers%22">Caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Researchers%22">Researchers</searchLink><br /><searchLink fieldCode="DE" term="%22Allied+Health+Personnel%22">Allied Health Personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Reflection%22">Reflection</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Teamwork%22">Teamwork</searchLink><br /><searchLink fieldCode="DE" term="%22Letters+%28Correspondence%29%22">Letters (Correspondence)</searchLink><br /><searchLink fieldCode="DE" term="%22Models%22">Models</searchLink><br /><searchLink fieldCode="DE" term="%22Dialogs+%28Language%29%22">Dialogs (Language)</searchLink><br /><searchLink fieldCode="DE" term="%22Research+Methodology%22">Research Methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Barriers%22">Barriers</searchLink>
– Name: DOI
  Label: DOI
  Group: ID
  Data: 10.1097/TLD.0000000000000302
– Name: ISSN
  Label: ISSN
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  Data: 0271-8294<br />1550-3259
– Name: Abstract
  Label: Abstract
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  Data: There is a need for intervention to support friendship for people living with aphasia. The purpose of this article is to describe a stakeholder engagement process that involved researchers, clinicians, people living with aphasia, and care partners to inform such intervention. Through reflection and firsthand accounts of non-university-based researchers, people not typically represented in the research process, we share details of two main lessons learned throughout the stakeholder engagement journey: (1) accessible engagement and (2) team correspondence. Finally, we describe experiences with use of the Social Convoy Model to support discussion and engagement about friendship and aphasia. We argue that this tool be a consideration in future intervention research in this area to support people with aphasia communicating their friendship priorities and goals. Although the richness of multistakeholder research teams has been documented, we hope that this article provides detail that is not commonly shared thus illuminating the process. We also hope to provide a transparent account of the cost and time required to ensure equity across stakeholder groups.
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  Data: 2023
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  Data: EJ1383039
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=eric&AN=EJ1383039
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        Value: 10.1097/TLD.0000000000000302
    Languages:
      – Text: English
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      Pagination:
        PageCount: 14
        StartPage: 43
    Subjects:
      – SubjectFull: Aphasia
        Type: general
      – SubjectFull: Friendship
        Type: general
      – SubjectFull: Intervention
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      – SubjectFull: Allied Health Personnel
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      – SubjectFull: Research
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      – SubjectFull: Reflection
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      – SubjectFull: Experience
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      – SubjectFull: Barriers
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