Involvement, Readiness for Primary Caregiving, Loneliness, and Self-Efficacy: A Comparison between Adult Sisters and Brothers of Individuals with Intellectual and Developmental Disabilities
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| Title: | Involvement, Readiness for Primary Caregiving, Loneliness, and Self-Efficacy: A Comparison between Adult Sisters and Brothers of Individuals with Intellectual and Developmental Disabilities |
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| Language: | English |
| Authors: | Adi Sharabi (ORCID |
| Source: | International Journal of Disability, Development and Education. 2024 71(2):270-286. |
| Availability: | Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals |
| Peer Reviewed: | Y |
| Page Count: | 17 |
| Publication Date: | 2024 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Foreign Countries, Adults, Intellectual Disability, Developmental Disabilities, Siblings, Sibling Relationship, Gender Differences, Caregiver Role, Participant Characteristics, Readiness, Decision Making, Self Efficacy, Psychological Patterns, Family Involvement |
| Geographic Terms: | Israel |
| DOI: | 10.1080/1034912X.2022.2092602 |
| ISSN: | 1034-912X 1465-346X |
| Abstract: | Sisters and brothers play an important role in the lives of their siblings with intellectual and developmental disabilities (IDD), starting in childhood and commonly increasing in adulthood. The current study compared typically-developing adult sisters' and brothers' level of involvement in the care of their siblings with IDD. Beyond this, the study examined differences in sisters' and brothers' readiness for primary caregiving - including their readiness for guardianship and belief in their sibling's independent decision-making, loneliness, and self-efficacy, and how these variables predict their involvement. Participants included 175 Israeli adult (aged 18 years and older) siblings - 118 sisters and 57 brothers of individuals with IDD (Intellectual Disability and/or Autism Spectrum Disorder). The participants completed online questionnaires. Results revealed sex differences, with sisters reporting more social involvement, greater belief in their sibling's ability to make independent decisions, lower levels of loneliness, and higher self-efficacy than brothers. Additionally, hierarchical regression analyses revealed a unique sex difference in predicting siblings' involvement, with readiness for the future role of guardianship positively predicting involvement only among brothers. Variability in sisters' and brothers' involvement needs to be considered when exploring transition planning to primary caregiving, including guardianship and supported decision-making. |
| Abstractor: | As Provided |
| Entry Date: | 2024 |
| Accession Number: | EJ1412595 |
| Database: | ERIC |
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| Abstract: | Sisters and brothers play an important role in the lives of their siblings with intellectual and developmental disabilities (IDD), starting in childhood and commonly increasing in adulthood. The current study compared typically-developing adult sisters' and brothers' level of involvement in the care of their siblings with IDD. Beyond this, the study examined differences in sisters' and brothers' readiness for primary caregiving - including their readiness for guardianship and belief in their sibling's independent decision-making, loneliness, and self-efficacy, and how these variables predict their involvement. Participants included 175 Israeli adult (aged 18 years and older) siblings - 118 sisters and 57 brothers of individuals with IDD (Intellectual Disability and/or Autism Spectrum Disorder). The participants completed online questionnaires. Results revealed sex differences, with sisters reporting more social involvement, greater belief in their sibling's ability to make independent decisions, lower levels of loneliness, and higher self-efficacy than brothers. Additionally, hierarchical regression analyses revealed a unique sex difference in predicting siblings' involvement, with readiness for the future role of guardianship positively predicting involvement only among brothers. Variability in sisters' and brothers' involvement needs to be considered when exploring transition planning to primary caregiving, including guardianship and supported decision-making. |
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| ISSN: | 1034-912X 1465-346X |
| DOI: | 10.1080/1034912X.2022.2092602 |
