Working Together as Scientific and Experiential Experts: How Do Current Ethical PAR-Principles Work in a Research Team with Young Adults with Developmental Language Disorder?

Saved in:
Bibliographic Details
Title: Working Together as Scientific and Experiential Experts: How Do Current Ethical PAR-Principles Work in a Research Team with Young Adults with Developmental Language Disorder?
Language: English
Authors: Karijn Aussems (ORCID 0000-0002-9308-5060), Jet Isarin, Alistair Niemeijer, Christine Dedding (ORCID 0000-0003-3296-4245)
Source: Educational Action Research. 2024 32(2):311-326.
Availability: Routledge. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Peer Reviewed: Y
Page Count: 16
Publication Date: 2024
Document Type: Journal Articles
Reports - Research
Descriptors: Foreign Countries, Action Research, Participatory Research, Researchers, Ethics, Young Adults, Developmental Disabilities, Language Impairments, Disabilities, Empowerment, Independent Living, Experience, Social Problems, Barriers
Geographic Terms: Netherlands
DOI: 10.1080/09650792.2022.2130386
ISSN: 0965-0792
1747-5074
Abstract: Participatory Action Research (PAR) brings unique ethical challenges. Scholars have developed seven ethical principles to address these challenges. So far, little has been published on how these ethical principles (are put to) work in different fields. We used the principles to evaluate our collaboration with co-researchers with developmental language disorder (DLD). This article aims to explore how the principles helped to reflect on the ongoing research practice. First, we needed to simplify the language of the principles so that the co-researchers could understand how they relate to concrete practices. Second, the co-researchers needed to be reminded of specific events before they could relate the principles to their own experiences. Lastly, for an evaluation of (co-) researchers dealing with multiple roles, from friend to colleague and client, this theme has been specifically included to the principle of personal integrity, so that it cannot be overlooked. Looking through a care ethical lens, we suggest speaking of "practical insights" rather than (ethical) principles, as it more clearly communicates that these insights are based on learning by doing and are not fixed, but build on (good) practices, whilst still allowing enough room for adjustments to the particularities inherent to each research process.
Abstractor: As Provided
Entry Date: 2024
Accession Number: EJ1417170
Database: ERIC
Full text is not displayed to guests.
Description
Abstract:Participatory Action Research (PAR) brings unique ethical challenges. Scholars have developed seven ethical principles to address these challenges. So far, little has been published on how these ethical principles (are put to) work in different fields. We used the principles to evaluate our collaboration with co-researchers with developmental language disorder (DLD). This article aims to explore how the principles helped to reflect on the ongoing research practice. First, we needed to simplify the language of the principles so that the co-researchers could understand how they relate to concrete practices. Second, the co-researchers needed to be reminded of specific events before they could relate the principles to their own experiences. Lastly, for an evaluation of (co-) researchers dealing with multiple roles, from friend to colleague and client, this theme has been specifically included to the principle of personal integrity, so that it cannot be overlooked. Looking through a care ethical lens, we suggest speaking of "practical insights" rather than (ethical) principles, as it more clearly communicates that these insights are based on learning by doing and are not fixed, but build on (good) practices, whilst still allowing enough room for adjustments to the particularities inherent to each research process.
ISSN:0965-0792
1747-5074
DOI:10.1080/09650792.2022.2130386