Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: A Systematic Review
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| Title: | Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: A Systematic Review |
|---|---|
| Language: | English |
| Authors: | Linda Swaab, Jane Goodwin, Jaime Wroe, Alix Woolard, Lynne McCormack, Linda Campbell (ORCID |
| Source: | Review Journal of Autism and Developmental Disorders. 2023 10(2):281-294. |
| Availability: | Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ |
| Peer Reviewed: | Y |
| Page Count: | 14 |
| Publication Date: | 2023 |
| Document Type: | Journal Articles Information Analyses |
| Descriptors: | Social Bias, Negative Attitudes, Child Rearing, Autism Spectrum Disorders, Children, Aggression, Behavior Problems |
| DOI: | 10.1007/s40489-021-00292-5 |
| ISSN: | 2195-7177 2195-7185 |
| Abstract: | Background: There is a growing body of research focused on autistic individuals who present with aggressive behaviour. Aggressive behaviour has been found to occur more frequently in autism compared with other developmental disabilities or the general population. The most common types of aggressive behaviours are self-injurious behaviours, aggression towards others and the destruction of property. Aggressive behaviour can threaten access to support services and education. Many types of stigma are experienced by parents as a result of their child's diagnosis or observed aggressive behaviour (e.g. ignorance, prejudice and discrimination). The aim of this systematic review was to synthesise the current research into the experience of stigma by parents of autistic children who display aggressive behaviour. The specific question addressed by this review was 'Do parents of autistic children with aggressive behaviours experience stigma?'. This review found that stigma is experienced in many forms and contributes to higher levels of stress and poorer quality of life for these families than for the general population and other disabilities. Methods: The published English-language literature was examined using multiple online databases, grey literature and hand searches. The review was conducted and reported using PRISMA guidelines. Studies investigating family members of children with a diagnosis of autism who exhibited aggressive behaviour were included. An additional criterion was that the participants had experienced some form of stigma because of their child's autism and/or aggressive behaviour. All studies that met the criteria were critically appraised. No limits were applied for date of publication up until February 6, 2019. Results: Total search results yielded 5707 records. Of these, nine studies were identified and reviewed. Two were identified as mixed method designs and the remaining seven were qualitative designs. Despite diverse research methods, research questions, interview guides, a large variation in age range and year of publication, the stigma associated with caring for an autistic child with aggressive behaviour was consistently identified. Conclusions: Taken together, the available research literature suggests that autistic people and their families experience high levels of stigma. For parents of autistic children who behave aggressively, stigma is even more prominent and invasive. This systematic review can conclude that this triad of autism, aggression and stigma is not well understood and is under-investigated. |
| Abstractor: | As Provided |
| Entry Date: | 2024 |
| Accession Number: | EJ1422819 |
| Database: | ERIC |
| FullText | Text: Availability: 0 |
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| Header | DbId: eric DbLabel: ERIC An: EJ1422819 AccessLevel: 3 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: A Systematic Review – Name: Language Label: Language Group: Lang Data: English – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Linda+Swaab%22">Linda Swaab</searchLink><br /><searchLink fieldCode="AR" term="%22Jane+Goodwin%22">Jane Goodwin</searchLink><br /><searchLink fieldCode="AR" term="%22Jaime+Wroe%22">Jaime Wroe</searchLink><br /><searchLink fieldCode="AR" term="%22Alix+Woolard%22">Alix Woolard</searchLink><br /><searchLink fieldCode="AR" term="%22Lynne+McCormack%22">Lynne McCormack</searchLink><br /><searchLink fieldCode="AR" term="%22Linda+Campbell%22">Linda Campbell</searchLink> (ORCID <externalLink term="http://orcid.org/0000-0002-8872-9626">0000-0002-8872-9626</externalLink>) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="SO" term="%22Review+Journal+of+Autism+and+Developmental+Disorders%22"><i>Review Journal of Autism and Developmental Disorders</i></searchLink>. 2023 10(2):281-294. – Name: Avail Label: Availability Group: Avail Data: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ – Name: PeerReviewed Label: Peer Reviewed Group: SrcInfo Data: Y – Name: Pages Label: Page Count Group: Src Data: 14 – Name: DatePubCY Label: Publication Date Group: Date Data: 2023 – Name: TypeDocument Label: Document Type Group: TypDoc Data: Journal Articles<br />Information Analyses – Name: Subject Label: Descriptors Group: Su Data: <searchLink fieldCode="DE" term="%22Social+Bias%22">Social Bias</searchLink><br /><searchLink fieldCode="DE" term="%22Negative+Attitudes%22">Negative Attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Child+Rearing%22">Child Rearing</searchLink><br /><searchLink fieldCode="DE" term="%22Autism+Spectrum+Disorders%22">Autism Spectrum Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink><br /><searchLink fieldCode="DE" term="%22Aggression%22">Aggression</searchLink><br /><searchLink fieldCode="DE" term="%22Behavior+Problems%22">Behavior Problems</searchLink> – Name: DOI Label: DOI Group: ID Data: 10.1007/s40489-021-00292-5 – Name: ISSN Label: ISSN Group: ISSN Data: 2195-7177<br />2195-7185 – Name: Abstract Label: Abstract Group: Ab Data: Background: There is a growing body of research focused on autistic individuals who present with aggressive behaviour. Aggressive behaviour has been found to occur more frequently in autism compared with other developmental disabilities or the general population. The most common types of aggressive behaviours are self-injurious behaviours, aggression towards others and the destruction of property. Aggressive behaviour can threaten access to support services and education. Many types of stigma are experienced by parents as a result of their child's diagnosis or observed aggressive behaviour (e.g. ignorance, prejudice and discrimination). The aim of this systematic review was to synthesise the current research into the experience of stigma by parents of autistic children who display aggressive behaviour. The specific question addressed by this review was 'Do parents of autistic children with aggressive behaviours experience stigma?'. This review found that stigma is experienced in many forms and contributes to higher levels of stress and poorer quality of life for these families than for the general population and other disabilities. Methods: The published English-language literature was examined using multiple online databases, grey literature and hand searches. The review was conducted and reported using PRISMA guidelines. Studies investigating family members of children with a diagnosis of autism who exhibited aggressive behaviour were included. An additional criterion was that the participants had experienced some form of stigma because of their child's autism and/or aggressive behaviour. All studies that met the criteria were critically appraised. No limits were applied for date of publication up until February 6, 2019. Results: Total search results yielded 5707 records. Of these, nine studies were identified and reviewed. Two were identified as mixed method designs and the remaining seven were qualitative designs. Despite diverse research methods, research questions, interview guides, a large variation in age range and year of publication, the stigma associated with caring for an autistic child with aggressive behaviour was consistently identified. Conclusions: Taken together, the available research literature suggests that autistic people and their families experience high levels of stigma. For parents of autistic children who behave aggressively, stigma is even more prominent and invasive. This systematic review can conclude that this triad of autism, aggression and stigma is not well understood and is under-investigated. – Name: AbstractInfo Label: Abstractor Group: Ab Data: As Provided – Name: DateEntry Label: Entry Date Group: Date Data: 2024 – Name: AN Label: Accession Number Group: ID Data: EJ1422819 |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=eric&AN=EJ1422819 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s40489-021-00292-5 Languages: – Text: English PhysicalDescription: Pagination: PageCount: 14 StartPage: 281 Subjects: – SubjectFull: Social Bias Type: general – SubjectFull: Negative Attitudes Type: general – SubjectFull: Child Rearing Type: general – SubjectFull: Autism Spectrum Disorders Type: general – SubjectFull: Children Type: general – SubjectFull: Aggression Type: general – SubjectFull: Behavior Problems Type: general Titles: – TitleFull: Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: A Systematic Review Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Linda Swaab – PersonEntity: Name: NameFull: Jane Goodwin – PersonEntity: Name: NameFull: Jaime Wroe – PersonEntity: Name: NameFull: Alix Woolard – PersonEntity: Name: NameFull: Lynne McCormack – PersonEntity: Name: NameFull: Linda Campbell IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 06 Type: published Y: 2023 Identifiers: – Type: issn-print Value: 2195-7177 – Type: issn-electronic Value: 2195-7185 Numbering: – Type: volume Value: 10 – Type: issue Value: 2 Titles: – TitleFull: Review Journal of Autism and Developmental Disorders Type: main |
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