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Factors Associated with Transition Planning in Autism and Other Developmental Disabilities

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Bibliographic Details
Title: Factors Associated with Transition Planning in Autism and Other Developmental Disabilities
Language: English
Authors: Charina Reyes (ORCID 0000-0003-2050-0224), Adam Perzynski, Shanna Kralovic, H. Gerry Taylor, Steven Wexberg, Shijun Zhu, Thomas W. Frazier, Nancy Roizen
Source: Journal of Developmental and Physical Disabilities. 2022 34(1):43-56.
Availability: Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Peer Reviewed: Y
Page Count: 14
Publication Date: 2022
Sponsoring Agency: Centers for Medicare and Medicaid Services (CMS) (DHHS)
National Center for Advancing Translational Sciences (NCATS) (NIH), Clinical and Translational Science Awards (CTSA) Program
Contract Number: UL1TR000439
Document Type: Journal Articles
Reports - Research
Descriptors: Transitional Programs, Planning, Autism Spectrum Disorders, Developmental Disabilities, Daily Living Skills, Self Management, Expectation, Parent Aspiration, Behavior Problems, Safety, Independent Living, Aggression, Sexuality
DOI: 10.1007/s10882-020-09785-3
ISSN: 1056-263X
1573-3580
Abstract: Objective: To determine whether functional self-care skills and presence of behavior problems in youth with developmental disabilities are associated with parents planning for the youth's transition to adulthood. Methods: This multi-site study consisted of 167 parents of youth aged 10-22 years with autism spectrum disorder, ADHD and/or other developmental disabilities who completed a questionnaire on transition to adulthood. Parent-rated child self-care status was measured using a six-item scale that had excellent reliability (Cronbach's alpha=0.90). Results: Multivariable logistic regression models revealed that parents were less likely to plan for the youth's transition to adulthood if their child needed more assistance with functional self-care skills (OR 0.78, 95% CI 0.63-0.96, p=0.021). Despite this unexpected finding, greater child need for assistance with self-care was associated with lower parental expectations that their children would live independently by age 22 (OR 0.40, 95% CI 0.24-0.66, p<0.001) and 35 (OR 0.47, 95% CI 0.35-0.63, p<0.001). The presence of behavioral problems (aggression, sexual behaviors and safety issues) was also associated with lower odds of parental expectations that their child would live independently in adulthood. Conclusions: Despite this unexpected finding, greater child need for assistance with self-care was associated with lower parental expectations that their children would live independently by age 22 (OR 0.40, 95% CI 0.24-0.66, p<0.001) and 35 (OR 0.47, 95% CI 0.35-0.63, p<0.001). The presence of behavioral problems (aggression, sexual behaviors and safety issues) was also associated with lower odds of parental expectations that their child would live independently in adulthood. Despite parents' awareness of the difficulties their children will face, less youth independence with self-care skills was associated with lower odds of plans for transition to adulthood and expectations for independent living. Results support the need for continued interventions targeted at improving daily living skills to achieve functional independence in adulthood, as well as interventions focused on aggression, safety and sexuality of the individuals.
Abstractor: As Provided
Entry Date: 2024
Accession Number: EJ1430915
Database: ERIC
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Description
Abstract:Objective: To determine whether functional self-care skills and presence of behavior problems in youth with developmental disabilities are associated with parents planning for the youth's transition to adulthood. Methods: This multi-site study consisted of 167 parents of youth aged 10-22 years with autism spectrum disorder, ADHD and/or other developmental disabilities who completed a questionnaire on transition to adulthood. Parent-rated child self-care status was measured using a six-item scale that had excellent reliability (Cronbach's alpha=0.90). Results: Multivariable logistic regression models revealed that parents were less likely to plan for the youth's transition to adulthood if their child needed more assistance with functional self-care skills (OR 0.78, 95% CI 0.63-0.96, p=0.021). Despite this unexpected finding, greater child need for assistance with self-care was associated with lower parental expectations that their children would live independently by age 22 (OR 0.40, 95% CI 0.24-0.66, p<0.001) and 35 (OR 0.47, 95% CI 0.35-0.63, p<0.001). The presence of behavioral problems (aggression, sexual behaviors and safety issues) was also associated with lower odds of parental expectations that their child would live independently in adulthood. Conclusions: Despite this unexpected finding, greater child need for assistance with self-care was associated with lower parental expectations that their children would live independently by age 22 (OR 0.40, 95% CI 0.24-0.66, p<0.001) and 35 (OR 0.47, 95% CI 0.35-0.63, p<0.001). The presence of behavioral problems (aggression, sexual behaviors and safety issues) was also associated with lower odds of parental expectations that their child would live independently in adulthood. Despite parents' awareness of the difficulties their children will face, less youth independence with self-care skills was associated with lower odds of plans for transition to adulthood and expectations for independent living. Results support the need for continued interventions targeted at improving daily living skills to achieve functional independence in adulthood, as well as interventions focused on aggression, safety and sexuality of the individuals.
ISSN:1056-263X
1573-3580
DOI:10.1007/s10882-020-09785-3