Validating the Communication and Symbolic Behavior Scales-Developmental Profile Infant-Toddler Checklist (CSBS-DP ITC) beyond Infancy in the CDKL5 Deficiency Disorder
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| Title: | Validating the Communication and Symbolic Behavior Scales-Developmental Profile Infant-Toddler Checklist (CSBS-DP ITC) beyond Infancy in the CDKL5 Deficiency Disorder |
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| Language: | English |
| Authors: | Jacinta Saldaris, Helen Leonard, Kingsley Wong, Peter Jacoby, Mary Spence, Eric D. Marsh, Tim A. Benke, Scott Demarest, Jenny Downs (ORCID |
| Source: | Journal of Autism and Developmental Disorders. 2024 54(7):2526-2535. |
| Availability: | Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ |
| Peer Reviewed: | Y |
| Page Count: | 10 |
| Publication Date: | 2024 |
| Sponsoring Agency: | National Institutes of Health (NIH) (DHHS) |
| Contract Number: | U01NS11431201A1 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Validity, Infants, Toddlers, Check Lists, Intellectual Disability, Goodness of Fit, Reliability, Caregiver Attitudes, Scores, Epilepsy, Psychometrics, Profiles, Behavior Rating Scales, Communication Skills, Child Development |
| Assessment and Survey Identifiers: | Communication and Symbolic Behavior Scales |
| DOI: | 10.1007/s10803-023-06002-w |
| ISSN: | 0162-3257 1573-3432 |
| Abstract: | CDKL5 deficiency disorder (CDD) results in early-onset epilepsy and lifelong cognitive and motor impairments. With no validated measure for communication in CDD, this study evaluated the psychometric properties of the Communication and Symbolic Behavior Scales-Developmental Profile Infant Toddler Checklist (CSBS-DP ITC). Caregivers (n = 150; affected individuals aged 1-29 years) completed the CSBS-DP ITC. Distribution of scores indicated a floor effect. There was poor divergent validity for the three-factor model but goodness of fit and convergent validity data were satisfactory for the one-factor model. Individuals with poorer overall functional abilities scored lower on the CSBS-DP ITC. Test-retest reliability was excellent. The floor effect could explain the very high reliability, suggesting problems as a sensitive outcome measure in clinical trials for CDD. |
| Abstractor: | As Provided |
| Entry Date: | 2024 |
| Accession Number: | EJ1433004 |
| Database: | ERIC |
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| Abstract: | CDKL5 deficiency disorder (CDD) results in early-onset epilepsy and lifelong cognitive and motor impairments. With no validated measure for communication in CDD, this study evaluated the psychometric properties of the Communication and Symbolic Behavior Scales-Developmental Profile Infant Toddler Checklist (CSBS-DP ITC). Caregivers (n = 150; affected individuals aged 1-29 years) completed the CSBS-DP ITC. Distribution of scores indicated a floor effect. There was poor divergent validity for the three-factor model but goodness of fit and convergent validity data were satisfactory for the one-factor model. Individuals with poorer overall functional abilities scored lower on the CSBS-DP ITC. Test-retest reliability was excellent. The floor effect could explain the very high reliability, suggesting problems as a sensitive outcome measure in clinical trials for CDD. |
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| ISSN: | 0162-3257 1573-3432 |
| DOI: | 10.1007/s10803-023-06002-w |
