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Needs Assessment and Patient-Guided Development of a Video-Based Diabetic Retinopathy Patient Education Tool

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Title: Needs Assessment and Patient-Guided Development of a Video-Based Diabetic Retinopathy Patient Education Tool
Language: English
Authors: Osama M. Ahm, Serina S. Applebaum (ORCID 0000-0001-9062-6178), Maham Ahmad, Danya M. Ahm, Prerak Juthani, Kristen Nwanyanwu
Source: Health Education Journal. 2024 83(6):587-597.
Availability: SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Peer Reviewed: Y
Page Count: 11
Publication Date: 2024
Sponsoring Agency: National Eye Institute (NEI) (DHHS/NIH)
Contract Number: 1K23EY03053001
Document Type: Journal Articles
Reports - Research
Descriptors: Diabetes, Patient Education, Video Technology, Needs Assessment, Program Development, Physicians, Patients, Animation, Attitudes, Educational Needs, Blindness, Visual Impairments, Adults
DOI: 10.1177/00178969241258818
ISSN: 0017-8969
1748-8176
Abstract: Objective: To gain retina physicians' and diabetic retinopathy (DR) patients' perspectives on needs and opportunities in DR education, and then develop and pilot test an educational video. Design: This study utilised qualitative interview data for video creation, and interview and survey data for assessment. Setting: This study was conducted in a single large academic medical centre. Method: We conducted semi-structured interviews with attending retina physicians and DR patients (Cohort A) which were coded for themes about needs in DR patient education. Using these interviews, we designed and piloted a 6-minute user-centred animated video among a second patient cohort (Cohort B), who completed post-intervention interviews. Results: Four physicians and 14 DR patients participated in the study. Themes from Cohort A included accessible information, early management, lifestyle factors and emotional context. Physician themes included effective communication, visual information delivery and individual-level diabetes management. Cohort B commented on the subsequently created video's improved accessibility, engagement and supplementation of their existing DR knowledge. Conclusion: Physicians and patients showed an interest in video education and identified unique educational needs. We used these insights to create a video that demonstrated positive patient uptake. Close attention to retina physicians' and DR patients' perspectives can offer a valuable approach in developing materials to increase patients' health knowledge. Within the context studied, videos may be more accessible and engaging than the use of traditional print-based education materials.
Abstractor: As Provided
Entry Date: 2024
Accession Number: EJ1442904
Database: ERIC
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  Data: Needs Assessment and Patient-Guided Development of a Video-Based Diabetic Retinopathy Patient Education Tool
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  Data: English
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  Data: <searchLink fieldCode="AR" term="%22Osama+M%2E+Ahm%22">Osama M. Ahm</searchLink><br /><searchLink fieldCode="AR" term="%22Serina+S%2E+Applebaum%22">Serina S. Applebaum</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0001-9062-6178">0000-0001-9062-6178</externalLink>)<br /><searchLink fieldCode="AR" term="%22Maham+Ahmad%22">Maham Ahmad</searchLink><br /><searchLink fieldCode="AR" term="%22Danya+M%2E+Ahm%22">Danya M. Ahm</searchLink><br /><searchLink fieldCode="AR" term="%22Prerak+Juthani%22">Prerak Juthani</searchLink><br /><searchLink fieldCode="AR" term="%22Kristen+Nwanyanwu%22">Kristen Nwanyanwu</searchLink>
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  Data: <searchLink fieldCode="SO" term="%22Health+Education+Journal%22"><i>Health Education Journal</i></searchLink>. 2024 83(6):587-597.
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  Data: SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
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  Data: 11
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  Data: 2024
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  Data: National Eye Institute (NEI) (DHHS/NIH)
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  Data: Journal Articles<br />Reports - Research
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  Data: <searchLink fieldCode="DE" term="%22Diabetes%22">Diabetes</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+Education%22">Patient Education</searchLink><br /><searchLink fieldCode="DE" term="%22Video+Technology%22">Video Technology</searchLink><br /><searchLink fieldCode="DE" term="%22Needs+Assessment%22">Needs Assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Program+Development%22">Program Development</searchLink><br /><searchLink fieldCode="DE" term="%22Physicians%22">Physicians</searchLink><br /><searchLink fieldCode="DE" term="%22Patients%22">Patients</searchLink><br /><searchLink fieldCode="DE" term="%22Animation%22">Animation</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes%22">Attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Educational+Needs%22">Educational Needs</searchLink><br /><searchLink fieldCode="DE" term="%22Blindness%22">Blindness</searchLink><br /><searchLink fieldCode="DE" term="%22Visual+Impairments%22">Visual Impairments</searchLink><br /><searchLink fieldCode="DE" term="%22Adults%22">Adults</searchLink>
– Name: DOI
  Label: DOI
  Group: ID
  Data: 10.1177/00178969241258818
– Name: ISSN
  Label: ISSN
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  Data: 0017-8969<br />1748-8176
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objective: To gain retina physicians' and diabetic retinopathy (DR) patients' perspectives on needs and opportunities in DR education, and then develop and pilot test an educational video. Design: This study utilised qualitative interview data for video creation, and interview and survey data for assessment. Setting: This study was conducted in a single large academic medical centre. Method: We conducted semi-structured interviews with attending retina physicians and DR patients (Cohort A) which were coded for themes about needs in DR patient education. Using these interviews, we designed and piloted a 6-minute user-centred animated video among a second patient cohort (Cohort B), who completed post-intervention interviews. Results: Four physicians and 14 DR patients participated in the study. Themes from Cohort A included accessible information, early management, lifestyle factors and emotional context. Physician themes included effective communication, visual information delivery and individual-level diabetes management. Cohort B commented on the subsequently created video's improved accessibility, engagement and supplementation of their existing DR knowledge. Conclusion: Physicians and patients showed an interest in video education and identified unique educational needs. We used these insights to create a video that demonstrated positive patient uptake. Close attention to retina physicians' and DR patients' perspectives can offer a valuable approach in developing materials to increase patients' health knowledge. Within the context studied, videos may be more accessible and engaging than the use of traditional print-based education materials.
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  Data: 2024
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  Data: EJ1442904
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        Value: 10.1177/00178969241258818
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      – Text: English
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        PageCount: 11
        StartPage: 587
    Subjects:
      – SubjectFull: Diabetes
        Type: general
      – SubjectFull: Patient Education
        Type: general
      – SubjectFull: Video Technology
        Type: general
      – SubjectFull: Needs Assessment
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      – SubjectFull: Program Development
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      – SubjectFull: Physicians
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      – SubjectFull: Patients
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      – SubjectFull: Attitudes
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      – SubjectFull: Blindness
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      – SubjectFull: Visual Impairments
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      – SubjectFull: Adults
        Type: general
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      – TitleFull: Needs Assessment and Patient-Guided Development of a Video-Based Diabetic Retinopathy Patient Education Tool
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