Needs Assessment and Patient-Guided Development of a Video-Based Diabetic Retinopathy Patient Education Tool

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Bibliographic Details
Title: Needs Assessment and Patient-Guided Development of a Video-Based Diabetic Retinopathy Patient Education Tool
Language: English
Authors: Osama M. Ahm, Serina S. Applebaum (ORCID 0000-0001-9062-6178), Maham Ahmad, Danya M. Ahm, Prerak Juthani, Kristen Nwanyanwu
Source: Health Education Journal. 2024 83(6):587-597.
Availability: SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Peer Reviewed: Y
Page Count: 11
Publication Date: 2024
Sponsoring Agency: National Eye Institute (NEI) (DHHS/NIH)
Contract Number: 1K23EY03053001
Document Type: Journal Articles
Reports - Research
Descriptors: Diabetes, Patient Education, Video Technology, Needs Assessment, Program Development, Physicians, Patients, Animation, Attitudes, Educational Needs, Blindness, Visual Impairments, Adults
DOI: 10.1177/00178969241258818
ISSN: 0017-8969
1748-8176
Abstract: Objective: To gain retina physicians' and diabetic retinopathy (DR) patients' perspectives on needs and opportunities in DR education, and then develop and pilot test an educational video. Design: This study utilised qualitative interview data for video creation, and interview and survey data for assessment. Setting: This study was conducted in a single large academic medical centre. Method: We conducted semi-structured interviews with attending retina physicians and DR patients (Cohort A) which were coded for themes about needs in DR patient education. Using these interviews, we designed and piloted a 6-minute user-centred animated video among a second patient cohort (Cohort B), who completed post-intervention interviews. Results: Four physicians and 14 DR patients participated in the study. Themes from Cohort A included accessible information, early management, lifestyle factors and emotional context. Physician themes included effective communication, visual information delivery and individual-level diabetes management. Cohort B commented on the subsequently created video's improved accessibility, engagement and supplementation of their existing DR knowledge. Conclusion: Physicians and patients showed an interest in video education and identified unique educational needs. We used these insights to create a video that demonstrated positive patient uptake. Close attention to retina physicians' and DR patients' perspectives can offer a valuable approach in developing materials to increase patients' health knowledge. Within the context studied, videos may be more accessible and engaging than the use of traditional print-based education materials.
Abstractor: As Provided
Entry Date: 2024
Accession Number: EJ1442904
Database: ERIC
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