Communicative Participation in Adolescents and Young Adults: A Concept Elicitation Study

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Title: Communicative Participation in Adolescents and Young Adults: A Concept Elicitation Study
Language: English
Authors: Eline Alons (ORCID 0000-0002-1593-5082), Nicole ter Wal (ORCID 0000-0002-8740-5590), Margreet R. Luinge (ORCID 0000-0003-2855-3523), Caroline B. Terwee (ORCID 0000-0003-4570-2826), Ellen Gerrits (ORCID 0000-0002-4403-0792), Lizet van Ewijk (ORCID 0000-0002-8916-8023)
Source: International Journal of Language & Communication Disorders. 2025 60(4).
Availability: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Peer Reviewed: Y
Page Count: 17
Publication Date: 2025
Document Type: Journal Articles
Reports - Research
Tests/Questionnaires
Descriptors: Adolescents, Young Adults, Barriers, Communication Problems, Interpersonal Communication, Communication Disorders, Stranger Reactions, Figurative Language, Stress Variables, Group Discussion, Measures (Individuals), Item Banks
DOI: 10.1111/1460-6984.70069
ISSN: 1368-2822
1460-6984
Abstract: Background: Communicative participation is the primary outcome of speech and language therapy for people with communication disorders. However, there are no instruments that measure communicative participation from the perspective of adolescents and young adults. Moreover, little research has been conducted in which adolescents and young adults with various communication problems were asked about relevant participation situations in which they need to communicate. Before a new measurement instrument can be developed, it is necessary to explore adolescents' and young adults' views on their communicative participation. Aims: In this study we identified situations in which adolescents and young adults experience barriers participating because of communication problems, as well as situations in which they have no difficulties. In addition, we identified aspects of these situations that influence communicative participation in order to gain a deeper understanding of concepts related to communicative participation. Methods and Procedures: This concept elicitation study concerned in-depth interviews on self-experienced communicative participation, in which diaries were used as a sensitizing exercise. Participants were asked to keep a diary for 1-2 weeks in which they described their communicative participation during the day. They were asked to describe situations in which they were not able to participate because of their communication disorder, and to describe situations in which they were able to participate. Within 1 week after completing the diary, participants were invited for an in-depth interview, in which the content of the diary was discussed. Outcomes and Results: Twelve participants were included in this study (7 females, 5 males; 13-27 years) with a variety of communication disorders, including language disorders, speech disorders, hearing loss, or a combination of them. They described a total of 234 situations related to different domains (e.g., communicative participation in school or with friends). Out of these situations, 37 concepts that influence communicative participation were found that were related to the six categories: person (e.g., strangers), topic (e.g., figurative language), pace (e.g., time pressure), location (e.g., school), moment (e.g., energy) and mode (e.g., group conversations). Conclusions and Implications: The results of the study provide understanding in adolescents' and young adults' perspectives on communicative participation. The identified situations form the basis for developing an item bank for measuring communicative participation in adolescents and young adults with communication disorders. In upcoming studies, the items will be extensively assessed on the quality aspects of comprehensiveness, comprehensibility and relevance.
Abstractor: As Provided
Entry Date: 2025
Accession Number: EJ1478064
Database: ERIC
FullText Text:
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  Data: Communicative Participation in Adolescents and Young Adults: A Concept Elicitation Study
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  Data: <searchLink fieldCode="AR" term="%22Eline+Alons%22">Eline Alons</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-1593-5082">0000-0002-1593-5082</externalLink>)<br /><searchLink fieldCode="AR" term="%22Nicole+ter+Wal%22">Nicole ter Wal</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-8740-5590">0000-0002-8740-5590</externalLink>)<br /><searchLink fieldCode="AR" term="%22Margreet+R%2E+Luinge%22">Margreet R. Luinge</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0003-2855-3523">0000-0003-2855-3523</externalLink>)<br /><searchLink fieldCode="AR" term="%22Caroline+B%2E+Terwee%22">Caroline B. Terwee</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0003-4570-2826">0000-0003-4570-2826</externalLink>)<br /><searchLink fieldCode="AR" term="%22Ellen+Gerrits%22">Ellen Gerrits</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-4403-0792">0000-0002-4403-0792</externalLink>)<br /><searchLink fieldCode="AR" term="%22Lizet+van+Ewijk%22">Lizet van Ewijk</searchLink> (ORCID <externalLink term="https://orcid.org/0000-0002-8916-8023">0000-0002-8916-8023</externalLink>)
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  Data: <searchLink fieldCode="SO" term="%22International+Journal+of+Language+%26+Communication+Disorders%22"><i>International Journal of Language & Communication Disorders</i></searchLink>. 2025 60(4).
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  Data: Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
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  Data: Y
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  Data: 17
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  Data: 2025
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  Data: Journal Articles<br />Reports - Research<br />Tests/Questionnaires
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  Data: <searchLink fieldCode="DE" term="%22Adolescents%22">Adolescents</searchLink><br /><searchLink fieldCode="DE" term="%22Young+Adults%22">Young Adults</searchLink><br /><searchLink fieldCode="DE" term="%22Barriers%22">Barriers</searchLink><br /><searchLink fieldCode="DE" term="%22Communication+Problems%22">Communication Problems</searchLink><br /><searchLink fieldCode="DE" term="%22Interpersonal+Communication%22">Interpersonal Communication</searchLink><br /><searchLink fieldCode="DE" term="%22Communication+Disorders%22">Communication Disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Stranger+Reactions%22">Stranger Reactions</searchLink><br /><searchLink fieldCode="DE" term="%22Figurative+Language%22">Figurative Language</searchLink><br /><searchLink fieldCode="DE" term="%22Stress+Variables%22">Stress Variables</searchLink><br /><searchLink fieldCode="DE" term="%22Group+Discussion%22">Group Discussion</searchLink><br /><searchLink fieldCode="DE" term="%22Measures+%28Individuals%29%22">Measures (Individuals)</searchLink><br /><searchLink fieldCode="DE" term="%22Item+Banks%22">Item Banks</searchLink>
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  Data: 10.1111/1460-6984.70069
– Name: ISSN
  Label: ISSN
  Group: ISSN
  Data: 1368-2822<br />1460-6984
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Communicative participation is the primary outcome of speech and language therapy for people with communication disorders. However, there are no instruments that measure communicative participation from the perspective of adolescents and young adults. Moreover, little research has been conducted in which adolescents and young adults with various communication problems were asked about relevant participation situations in which they need to communicate. Before a new measurement instrument can be developed, it is necessary to explore adolescents' and young adults' views on their communicative participation. Aims: In this study we identified situations in which adolescents and young adults experience barriers participating because of communication problems, as well as situations in which they have no difficulties. In addition, we identified aspects of these situations that influence communicative participation in order to gain a deeper understanding of concepts related to communicative participation. Methods and Procedures: This concept elicitation study concerned in-depth interviews on self-experienced communicative participation, in which diaries were used as a sensitizing exercise. Participants were asked to keep a diary for 1-2 weeks in which they described their communicative participation during the day. They were asked to describe situations in which they were not able to participate because of their communication disorder, and to describe situations in which they were able to participate. Within 1 week after completing the diary, participants were invited for an in-depth interview, in which the content of the diary was discussed. Outcomes and Results: Twelve participants were included in this study (7 females, 5 males; 13-27 years) with a variety of communication disorders, including language disorders, speech disorders, hearing loss, or a combination of them. They described a total of 234 situations related to different domains (e.g., communicative participation in school or with friends). Out of these situations, 37 concepts that influence communicative participation were found that were related to the six categories: person (e.g., strangers), topic (e.g., figurative language), pace (e.g., time pressure), location (e.g., school), moment (e.g., energy) and mode (e.g., group conversations). Conclusions and Implications: The results of the study provide understanding in adolescents' and young adults' perspectives on communicative participation. The identified situations form the basis for developing an item bank for measuring communicative participation in adolescents and young adults with communication disorders. In upcoming studies, the items will be extensively assessed on the quality aspects of comprehensiveness, comprehensibility and relevance.
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  Data: 2025
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        Value: 10.1111/1460-6984.70069
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      – Text: English
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        PageCount: 17
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      – SubjectFull: Adolescents
        Type: general
      – SubjectFull: Young Adults
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      – SubjectFull: Barriers
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      – SubjectFull: Communication Problems
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      – SubjectFull: Group Discussion
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