From Awareness to Action: Facilitators and Advocacy in Healthcare by Autistic Adults
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| Title: | From Awareness to Action: Facilitators and Advocacy in Healthcare by Autistic Adults |
|---|---|
| Language: | English |
| Authors: | Megan Best (ORCID |
| Source: | Autism: The International Journal of Research and Practice. 2025 29(10):2513-2523. |
| Availability: | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com |
| Peer Reviewed: | Y |
| Page Count: | 11 |
| Publication Date: | 2025 |
| Sponsoring Agency: | Health Resources and Services Administration (HRSA) (DHHS) |
| Contract Number: | UT2MC39440 |
| Document Type: | Journal Articles Reports - Research |
| Descriptors: | Adults, Autism Spectrum Disorders, Influences, Access to Health Care, Barriers, Experience, Knowledge Level, Health Personnel, Attitudes, Self Advocacy, Advocacy, Health Services |
| DOI: | 10.1177/13623613251343350 |
| ISSN: | 1362-3613 1461-7005 |
| Abstract: | Autistic adults face various psychological and physical health conditions which often require ongoing medical attention. Despite a greater likelihood of health conditions, autistic adults face many systemic barriers in accessing healthcare services. It is important to identify facilitators to healthcare access and recognize the impact of self-advocacy on these experiences. In this qualitative study, we interviewed 15 autistic participants to understand their experienced and desired facilitators when accessing healthcare services, as well as the role of self-advocacy in accessing these services. Overall, participants agreed that formal and informal supports, provider knowledge about autism, and provider openness to providing accommodations served as facilitators. Participants also shared about their experiences related to self-advocacy and accessing healthcare services such as examples of self-advocacy in healthcare, learning to be a self-advocate, and facilitators of self-advocacy. Implications for research and practice are discussed. |
| Abstractor: | As Provided |
| Entry Date: | 2025 |
| Accession Number: | EJ1482872 |
| Database: | ERIC |
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| Abstract: | Autistic adults face various psychological and physical health conditions which often require ongoing medical attention. Despite a greater likelihood of health conditions, autistic adults face many systemic barriers in accessing healthcare services. It is important to identify facilitators to healthcare access and recognize the impact of self-advocacy on these experiences. In this qualitative study, we interviewed 15 autistic participants to understand their experienced and desired facilitators when accessing healthcare services, as well as the role of self-advocacy in accessing these services. Overall, participants agreed that formal and informal supports, provider knowledge about autism, and provider openness to providing accommodations served as facilitators. Participants also shared about their experiences related to self-advocacy and accessing healthcare services such as examples of self-advocacy in healthcare, learning to be a self-advocate, and facilitators of self-advocacy. Implications for research and practice are discussed. |
|---|---|
| ISSN: | 1362-3613 1461-7005 |
| DOI: | 10.1177/13623613251343350 |
